Elle

Well, I will tell you that I was diagnosed bc I saw it on my chest scan results that, I had requested. And the doctor there said, I am sorry you have Interstitual Pulmonary Fibrosis. But, my doctor who is also a Pulmonologist never told me for two years , I kept going crazy thinking why am I coughing so much? That’s major medical negligence. So, I…[Read more]

Omg for Prednisone, Benzonate and Methylprednisolone all gave me  arash, nausea, dizziness. I still haven’t gotten the Esbriet. But my dilemma has been my Insurance which is palin out being inhumane. I need to take Promathazine -Dm 4 times a day which is only every g hours, this new doctor agreed that I need oxygen, But again the Insurance is not…[Read more]

Honestly, I had the worst reaction to Prednisone, Benzonate 100 which is “Tessalon,” by the way, and Methylprednisone. None of these crappy neds did anything for me. I was vomiting, experienced Nausea, I  had rashes, couldn’t sleep, and had rashes. I don’t know, I am so tired of the medical negligence which, I am receiving. I am tired of the…[Read more]

Wow I am happy that you guys can cough up the mucus. When I only had scarring on my left lung, yes I was able to cough up mucus. But it’s been like a year now that I have a very strong dry hacking cough that feels like I have two souls inside of me. And it hurts really bad because, I will cough for hours and hours. I also have now developed sort…[Read more]

Rod , I couldn’t of said it better….Thank you.

Hi Char thanks for writing back to me. Well from my end I know quite a few people especially when they are , I guess I don’t at the end of the line. I realize this is a terminal illness, and I truly hate how Doctors just don’t be more open on what to expect. I actually have seen many people mention here that they taCough Syrup like Promethazine…[Read more]

Hi Char ,

Thanks for repkying to me yes it’s not just the gerd, it’s the consistent high blood pressure, I am constantly getting dizzy which is due to lack of oxygen to my brain so, I am always falling. As, I have mentioned, I hurt my right knee badly. But , I am curious if anyone else has a pulmonologist that refuses to give cough syrup but…[Read more]

I feel the same way. But, if I may I would like to make a comment because I am curious to know if anyone else has similar symptoms to mine. I have developed severe  Gerd, so now even if i want to eat, nothing goes down. I vomit almost every single day. I feel unbearable and excruciating pain in my lungs / chest, because I keep cough for hours and…[Read more]

I was so traumatized, because my doctor who is also a Pulmonologist never told me that, I had Pulmonary Fibrosis. so something told me to ask for the results of my Ct can and when I opened the letter , I saw on my results that, I had :”pulmonary Fibrosis.” Now it has spread to my right Lung. So I am one of the unlucky one in which my PF is getting…[Read more]

Hello, nice to meet you. I am new also. I use the nebulizer and the inhaler and none of it works. My cough is so dry and I sound like there are 2 persons coughing inside my body. But I have something to say . Back in 2019, I was diagnosed by my M.D and pulmonologist that, I had pulmonary disease. But he was rather on the arrogant side, Then I say…[Read more]

Hello how are you well I have been a vegetarian for the last five years and I can’t tell you how much lighter my stomach feels and how my energy is a lot better. But when I was diagnosed with Pulmonary Fibrosis I have lost my energy, and I have no appetite. Yes, I know organic food is very expensive. But really don’t spend that much on my…[Read more]