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Tonya Worley

Home Members Tonya Worley
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@wayovermyhead143

@ellebleu So I live in Daytona Beach Florida will you be close by? View
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    Tonya Worley replied to the topic The Importance of Patient-Centered Care in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 days, 9 hours ago

    Excellent subject and one that really is in need of effecting. I feel that IPF/PF unfortunately is totally left at the mercy of our healthcare professionals since there is no staging or progression markers, we have exacerbations so many times we are unable to be remedied wherein comfort and pain mgmt. are not addressed effectively. So many people…[Read more]

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    Tonya Worley and Profile picture of ElleElle are now friends 8 months, 1 week ago

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    Tonya Worley posted an update 8 months, 1 week ago

    @ellebleu So I live in Daytona Beach Florida will you be close by?

    • Profile picture of Elle
      Elle replied 3 months, 1 week ago

      Well, I am still stuck here in this awful New Jersey, I used to live in Miami. But, I was thinking about moving to Saint Petersburg. But, I would love it if we would keep in touch.

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    Tonya Worley replied to the topic Top 4 Words You'd Use to Describe IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months, 1 week ago

    I had to get my throat stretched.

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    Tonya Worley replied to the topic Mental Health & Chronic Illness Advice in the forum Living with Pulmonary Fibrosis: 50+ 8 months, 1 week ago

    I am late as usual lol… I am still trying to figure the forum out as far as the notifications so I will not miss the new posts it seems I still am late or I just accidently run up on a post such as this one.

    So many illnesses affect us emotionally and it can throw any dormant mental health issue into fast forward if they had mental health…[Read more]

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    Tonya Worley replied to the topic IPF patient symptoms in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months, 2 weeks ago

    Amy, could you as a nurse explain what your mom’s experience with IPF has been like for us that really have no idea what to expect and fortunately I haven’t experienced too much bad at least I have been able to deal with it so far i.e. the changes in my health since diagnosis.

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    Tonya Worley replied to the topic IPF patient symptoms in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months, 3 weeks ago

    I responded to this, but I decided to make my response a topic instead regarding “Normal Progression” in a topic I will call “Is Normal Progression a convenient answer or a Copt-out for the IPF/PF Patient?”  so maybe it will bring on converation about this overused response we get from our doctors.

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    Tonya Worley replied to the topic IPF patient symptoms in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months, 3 weeks ago

    Wow, I ask myself the same question so I don’t have any answer but I too have gone from a dry cough to a thick plug of mucus that takes me a minute or so of coughing in efforts to get it up.  I begin to panic when I can’t get it up but so far within at most 2 minutes, I can get it up or situated wherein it doesn’t bother me.  It’s not so much i…[Read more]

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    Tonya Worley changed their profile picture 10 months, 2 weeks ago

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    Tonya Worley became a registered member 10 months, 2 weeks ago

    • Profile picture of Christie Patient
      Christie Patient replied 10 months, 2 weeks ago

      Welcome to the forum community Tonya, we’re glad you found us!

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