Tonya Worley

Excellent subject and one that really is in need of effecting. I feel that IPF/PF unfortunately is totally left at the mercy of our healthcare professionals since there is no staging or progression markers, we have exacerbations so many times we are unable to be remedied wherein comfort and pain mgmt. are not addressed effectively. So many people…[Read more]

I had to get my throat stretched.

I am late as usual lol… I am still trying to figure the forum out as far as the notifications so I will not miss the new posts it seems I still am late or I just accidently run up on a post such as this one.

So many illnesses affect us emotionally and it can throw any dormant mental health issue into fast forward if they had mental health…[Read more]

Amy, could you as a nurse explain what your mom’s experience with IPF has been like for us that really have no idea what to expect and fortunately I haven’t experienced too much bad at least I have been able to deal with it so far i.e. the changes in my health since diagnosis.

I responded to this, but I decided to make my response a topic instead regarding “Normal Progression” in a topic I will call “Is Normal Progression a convenient answer or a Copt-out for the IPF/PF Patient?”  so maybe it will bring on converation about this overused response we get from our doctors.

Wow, I ask myself the same question so I don’t have any answer but I too have gone from a dry cough to a thick plug of mucus that takes me a minute or so of coughing in efforts to get it up.  I begin to panic when I can’t get it up but so far within at most 2 minutes, I can get it up or situated wherein it doesn’t bother me.  It’s not so much i…[Read more]