I have not read through this entire thread, so if this has already been posted I apologize. A quick way to search for a practitioner who uses K-Laser (one of a handful of class IV lasers) is to go HERE. And when you speak to the doctor and should they not know anything about IPF and laser I would direct them to Dr. Hall’s work.

As I said… Read more

Floyd,

That is great that you are not ready, but don’t wait longer, hoping you will get better, if and when you feel you need more support, because like I said, it’s purpose is to allow you to have the best quality of life towards the end.

Megan

Hi May,

Yes, my dad did use Ofev, but it’s really hard to say if it worked. He didn’t feel like they did. What it did do was give him chronic diarrhea. Outside of medication (prednisone was helpful at times for breathing), I think the best thing you could do it make sure you are eating very well. If you are not feeding your body optimally… Read more

Yes, this is very serious potential problem!!! PLEASE have plenty of canisters on hand and know how long each will last given the liters you currently need. We had a scare with my dad when his concentrator decided to call it quits at 9:30PM. Thankfully we had some back-ups, but they would have only lasted 12 hours and the oxygen supplier would… Read more

Hi Bill,

Yes, use the morphine — of course as directed, but if it is low dose as my dads was, I think you’d really have a to take a lot for it to be an issue. It is very commonly prescribed for air hunger. My dad would panic if he thought there was a chance he would run out over he weekend — it worked that well for him. He was directed to… Read more

Charlene,

Oh my goodness, I didn’t realize you are so young!!! I’m 42 and consider 31 very young 🙁  I know there are many variations of the disease and while I know nothing of your disease, I like to think on the positive side in that you have youth on your side. Also, those of us in the younger generation are much more aware of the… Read more

Death is not something anyone enjoys discussing, particularly when it is a loved one or yourself. I know the reason we are here is because either you or someone you love is battling IPF/PF. I am here because of my father. I would like to share with you what the remaining 5 months of his life were like. I know that everyone progresses… Read more

Hi John,

I am a chiropractor and use class IV laser in my office. I am so happy to hear that you are getting this treatment. My father passed away on the 20th of this month after battling PF for 6 years. I wanted to use it on him, but he simply lived too far away. I have no reason to believe that it will not offer you some benefit. What that… Read more

Thanks NanaJane. The new hospice service is night and day different.

Hi Charlene,

Thanks for the response. And no problem about the delay — I know you have a life!! 😉

As far as the “improving” was concerned he did improve after being released from the hospital, but as I said, it was likely due to the PE dissolving. Though I am not certain as there has not been any chest scans since.

I wanted him back… Read more

I am the caregiver for my father (72y/o). He was dx’d about 3 years ago and over the past 1.5yrs has declined significantly. Aug 26. ’18 he suffered a PE. He is home now on hospice. Between Sept. 1st up until today he has improved (compared to what he was like while in the hospital). Three weeks ago he was removed from hospice. However, after… Read more

Thank you for this list of books!!!