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Joe

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@mewmath1

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    Joe replied to the topic CT Scan Reads Compatible with Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month ago

    Jon,

    Thanks for your response and here is an update. I am learning all this from a fire hose. The FEV/FVC was 98% so I read it wrong. The 74 was the recording but for my age, it was 98% so everything appears to be normal or above normal for a 58 year old who exercises everyday. I do have my appointment at Duke Pulmonary Clinic on August 11th. It…[Read more]

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    Joe replied to the topic Needing a good pulmonologist in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month, 1 week ago

    There are 3 PFF Care Centers in Florida. Two of them are within 3 hours of Polk County Florida. These PFF Care Centers are the best in the country for pulmonary fibrosis: https://www.pulmonaryfibrosis.org/researchers-healthcare-providers/community-engagement/care-center-network

     

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    Joe replied to the topic CT Scan Reads Compatible with Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month, 1 week ago

    I would like to thank everyone for their thoughtful input. It really helps. Thank you!

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    Joe replied to the topic CT Scan Reads Compatible with Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month, 1 week ago

    Jonathan,

    That has been one of the most detailed explanations I have had and is extremely astute based on all the reading I have recently done. Wouldn’t it be nice if my pulmonologist would have stated exactly what you had stated? First time I saw him, he wrote that I had asymptomatic pulmonary fibrosis. I was sent for an ILD panel after that and…[Read more]

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    Joe started the topic CT Scan Reads Compatible with Pulmonary Fibrosis in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month, 2 weeks ago

    I am a healthy 58 year old who can run an 8 minute mile and hold their breadth more than 2 minutes. I went for a Calcium Scan after a friend of mine told me about it to check the status of my heart. I found out my heart is great but they found minor scarring of my lungs. This caused me to get a full CT Scan which came back with “The prone…[Read more]

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    Joe became a registered member 1 month, 2 weeks ago

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      Christie Patient replied 1 month, 2 weeks ago

      Welcome to the PF forums Joe, we’re glad you found us.

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