Joe

Jon,

Thanks for your response and here is an update. I am learning all this from a fire hose. The FEV/FVC was 98% so I read it wrong. The 74 was the recording but for my age, it was 98% so everything appears to be normal or above normal for a 58 year old who exercises everyday. I do have my appointment at Duke Pulmonary Clinic on August 11th. It…[Read more]

There are 3 PFF Care Centers in Florida. Two of them are within 3 hours of Polk County Florida. These PFF Care Centers are the best in the country for pulmonary fibrosis: https://www.pulmonaryfibrosis.org/researchers-healthcare-providers/community-engagement/care-center-network

I would like to thank everyone for their thoughtful input. It really helps. Thank you!

Jonathan,

That has been one of the most detailed explanations I have had and is extremely astute based on all the reading I have recently done. Wouldn’t it be nice if my pulmonologist would have stated exactly what you had stated? First time I saw him, he wrote that I had asymptomatic pulmonary fibrosis. I was sent for an ILD panel after that and…[Read more]