Pulmonary Fibrosis News Forums | Michele | Activity https://pulmonaryfibrosisnews.com/forums/members/michele55/activity/ Activity feed for Michele. Tue, 21 Apr 2026 01:00:26 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 d83c3cd322ecae00dcaecbd474a39ba8 Michele posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/30683/#acomment-30684 Mon, 06 Dec 2021 17:42:02 -0600 Thank you for your reply. I have since since a Rheumatologist and they agree with you. No connection to ipf just a coincidence.

In reply to - Denny posted an update @michele55 Michele, my father and brothers all had the dupuytrens contracture on their hands and had treatment or surgery. I have IPF (Pneumonitis) and Im sure there is no relation to both of them. ]]> 93c0bda243e4913baebdab2ec5964e7e Michele replied to the discussion Dupuytren's and Raynauds with IPF in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/dupuytrens-and-raynauds-with-ipf/#post-29973 Fri, 17 Sep 2021 16:50:21 -0500 Reply to Dupuytren's and Raynauds with IPF

After a long wait to see the Rheumatologist I cannot report any specific findings. Today was the day! At this time the doctor said that their is no, or not sufficient evidence to suggest scleroderma. Which is great news! But I am left with the questions of what my tendons in my hands are doing and planning to do? They are still troubling me… Read more

]]> 5405f81695d33a1c13a106f6b7c6c3dc Michele replied to the discussion Dupuytren's and Raynauds with IPF in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/dupuytrens-and-raynauds-with-ipf/#post-29624 Fri, 20 Aug 2021 10:16:47 -0500 Reply to Dupuytren's and Raynauds with IPF

So we are not alone! I am due to see a Rheumatologist soon to look at this concern. I will let you know what I learn. For now I take anti inflammatory meds because the pain, difficulty and loss of my finger functions were making me feel a little desperate.

Michele

]]> 99f9ba06f1b80a68ad84ce3b8f8ef1e7 Michele started the discussion Dupuytren's and Raynauds with IPF in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/dupuytrens-and-raynauds-with-ipf/ Mon, 16 Aug 2021 19:33:05 -0500 Dupuytren's and Raynauds with IPF

I have developed Dupuytren’s and Raynauds over the last 6 months. Sometimes I have aches in my fingers and palms and in my index finger shooting pain and numbness. (I know that sounds impossible but it happens) I was just wondering if anyone else has issues with their hands.

]]> e1438fe63f5a5d99816ab8d355e092f6 Michele replied to the discussion Acute Exacerbation and Cyclophosphamide in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/acute-exacerbation-and-cyclophosphamide/#post-29557 Mon, 16 Aug 2021 19:15:26 -0500 Reply to Acute Exacerbation and Cyclophosphamide

Dear All

I have read with interest the reports of low oxygen saturation after a covid jab. I had the Johnson & Johnson and for 24 hours afterwards I had low oxygen saturation. I clearly was not alone.

 

 

]]> 9ec4f9bc3abec86a801d9c639693ddc0 Michele replied to the discussion Coughing in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/coughing/#post-29271 Wed, 21 Jul 2021 04:56:47 -0500 Reply to Coughing

Omez 40mg once a day before food sorted me out. I hope everyone can access it. It works.

]]> d22333199f71890538febd474a047130 Michele posted an update: In April 2021 I was diagnosed with IPF, both my brother […] https://pulmonaryfibrosisnews.com/forums/activity/p/28267/ Fri, 09 Jul 2021 05:15:49 -0500 In April 2021 I was diagnosed with IPF, both my brother and father died as a result of Ipf, so when I was diagnosed I was not surprised.

My question to the forum members is as follows: How many members have Dupuytren’s? I have watched my hands change over the last 6 months. I sometimes wonder if my hands are not acting as an indicator for… Read more

]]> 0 bcaca46f83fbf5acc6a086b2beb88bdc Michele joined the group Research and Development https://pulmonaryfibrosisnews.com/forums/activity/p/28240/ Thu, 08 Jul 2021 04:07:29 -0500 0 616ea92b1b93db891f0e05fa32569dee Michele became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/27703/ Fri, 11 Jun 2021 14:36:37 -0500 1