• Denny posted a new activity comment 1 week ago

    I don’t know of anyone who has not been helped significantly taking the herbs. They made a huge difference for me and some people on this forum, Steve Dragoo, Dr Andy Hall and a couple others. Steve was able to go off oxygen while taking them and Andy Hall noticed a difference too. I know of a patient that had a tumor shrunk taking different herbs…[Read more]

  • Denny posted a new activity comment 1 week, 3 days ago

    I just got my paperwork today in the mail and U of M is only taking 5 recruits so I don’t know if I will make it after I am screened. However, my disease has not progressed since I took Chinese herbs 2 years ago from WEI Labs and my last function test in June was my best so far!

    • Denny
      Any thoughts on if Laser or Chinese herbs helped you the most. I am skeptical about the Chinese herbs.

      • Denny replied 1 week ago

        I don’t know of anyone who has not been helped significantly taking the herbs. They made a huge difference for me and some people on this forum, Steve Dragoo, Dr Andy Hall and a couple others. Steve was able to go off oxygen while taking them and Andy Hall noticed a difference too. I know of a patient that had a tumor shrunk taking different herbs…[Read more]

  • Denny posted a new activity comment 1 week, 3 days ago

    They say early testing has shown that it MAY reverse the disease but I think the best thing for the scarring may be the laser that many are doing on this site, plus serrapeptase gets rid of dead protein in the body (scarring).

  • Denny posted an update 2 weeks ago

    @let666 I am registered at U of M and will begin the study shortly. What I like about GLPG1690 is that only one third of the patients get a placebo. Im excited about it.

    • Thank you Denny for your update. Mark

    • Denny,
      What I am not sure about is if GLPG 1690 can reverse some of fibrosis stiffness and scarring or if it just stops from getting worse. Do you know?

      • They say early testing has shown that it MAY reverse the disease but I think the best thing for the scarring may be the laser that many are doing on this site, plus serrapeptase gets rid of dead protein in the body (scarring).

      • I just got my paperwork today in the mail and U of M is only taking 5 recruits so I don’t know if I will make it after I am screened. However, my disease has not progressed since I took Chinese herbs 2 years ago from WEI Labs and my last function test in June was my best so far!

        • Denny
          Any thoughts on if Laser or Chinese herbs helped you the most. I am skeptical about the Chinese herbs.

          • Denny replied 1 week ago

            I don’t know of anyone who has not been helped significantly taking the herbs. They made a huge difference for me and some people on this forum, Steve Dragoo, Dr Andy Hall and a couple others. Steve was able to go off oxygen while taking them and Andy Hall noticed a difference too. I know of a patient that had a tumor shrunk taking different herbs…[Read more]

  • Denny posted an update 2 weeks, 1 day ago

    @caneelbay1 John, I don’t think that laser slows or stops progression, but only helps heal the scarring in the lungs

  • Denny posted an update 3 weeks, 4 days ago

    @rorcsearsrnaol-com I highly suggest that you get into one of the clinical trials at Cleveland Clinic or U of M. I was called by the Cleveland Clinic to get into theirs which has been recruiting patients for a promising drug but only phase 2. Michigan is getting ready for their phase 3 on GLPG 1690 which reversed the fibrosis in mice and has very…[Read more]

  • Denny posted an update 4 weeks ago

    @allang Just a suggestion: I would definitely try a month supply of WEI before the OFEV. In talking to Cassi and the people on this site plus doctor testimonials I have yet to find someone who has NOT improved with the WEI herbs. I used them for GERD and it cured the issue in 2 weeks, And there is a client that reported shrinkage of a tumor last…[Read more]

  • Denny posted an update 4 weeks ago

    @allang I have used the WEI lung herbs on 3 different occasions with great success. Each of my 5 lung tests have improved and the last one my bad DLCO number went up 14%. The first time in august of 2017 after I was diagnosed made a huge difference in my breathing. I have since used a month supply in 2018 and one month in 2019 as a maintenance…[Read more]

  • ajd and Profile picture of DennyDenny are now friends 2 months, 1 week ago

  • Denny posted a new activity comment 2 months, 1 week ago

    Hi Lynn, yes I have scarring but my O2 is still up around 98/99. My DLCO is my bad number where it is hard to get my oxygen to my organs and release carbon dioxide.

  • Steve,  I took the WEI herbs for 2 months in August of 2017 and it seemed to STOP any progression any helped my breathing a lot. They suggest to do an occassional 2 week or monthly dose once a year which I do. The herbs seemed to have stopped the progression if there was any because my last 4 function tests have been stable or improved and the…[Read more]

  • I forgot to mention that the BG00011 testing is a weekly self administered shot and a monthly shot at the Clinic (2 hours one way drive), plus CT scans, PFTs, blood tests, etc. I would much rather do a phase 3 pills instead of phase 2b shots…

  • So I was called last Thursday to see if I wanted to do the GB00011 clinical trial at Cleveland Clinic and they sent me all of the info (21 pages).  I had my lung test on Friday at U of M and my pulmonologist said they will be calling me in the next month to volunteer for the GLPG 1690 phase 3 study. I did take one month of the WEI herbs (actually…[Read more]

  • Denny posted a new activity comment 2 months, 2 weeks ago

    Great Steve, I think that I mentioned that I started feeling a big boost in the third week of the WEI products, it got me back playing hockey at a high level. I hope it keeps working for you, I believe in their herbs for every condition. They have herbs for mucus, for cough, for infection, for GERD, etc.

  • Denny posted an update 2 months, 2 weeks ago

    @janriche I don’t know where you leave but they are looking for volunteers at the Cleveland Clinic now for BG00011, and I am soon doing the Galapagos study at University of Michigan GLPG 1690

    • Hi Denny,
      I live in Tucson Arizona, my Galapagos trial is at Banner Hospital and the U of A. The Cleveland thing sounds interesting. How do you get in touch with them?

  • Denny posted an update 2 months, 3 weeks ago

    @charlene-marshall Do you remember who is taking the WEI Lab herbs? Was it Steve or John Styles?

    • Hi Denny, nice to hear from you! I don’t believe it was John, I think it is @steve-dragoo. You started Wei Lab products upon returning home, right Steve? 🙂

      • @charlene-marshall

        Hi Charlene – Yes it’s me on Wei. Dennis reached out. I believe it is helping quite a lot as I am handling the harsh environment of the Philippines and no O2 for 2 weeks. I have had very little symptoms at all except a little out of breath for a few seconds sometimes when I climb the stairs. O2 meter says the same as when in…[Read more]

        • Great Steve, I think that I mentioned that I started feeling a big boost in the third week of the WEI products, it got me back playing hockey at a high level. I hope it keeps working for you, I believe in their herbs for every condition. They have herbs for mucus, for cough, for infection, for GERD, etc.

        • I am so happy to hear this @steve-dragoo, wonderful news! I know Denny mentions regularly how satisfied he is with these products so I am thrilled to hear they are working for you. Were they expensive if I may ask? 🙂

          • Hi Charlene @charlene-marshall and Denny @deliassen ,

            Wei has helped – just can’t say how much at this point because the city environment here is harsh but very little cough and not substantial at all. Pretty much cured the lung mucus with serrapeptase and like the side benefits of reduced varicose veins and the other cleaning effects it has on…[Read more]

            • Thanks so much for sharing Steve, this is such great news! Did you find you developed more prominent/obvious varicose veins since your PF diagnosis? I cannot imagine they are related but your mention of them is so timely. I noticed some really dark ones, and a big patch on the back of my knee… so dark it could almost be a bruise (it isn’t,…[Read more]

              • Hi Charlene,

                I have had the varicose veins for at least 10 years and they are most likely related to being diabetic and over weight back then. Since I don’t take any prescriptions for IPF – just several different supplements – I don’t know if what you are experiencing is IPF related or something from any prescriptions you may be using.

                When I…[Read more]

  • The problem is it takes 3 to 4 years to get through the trials and development. One article just came in on TD 139 in which they are doing phase 2/3. IT IS A POWDER NASAL SPRAY THAT IS WORKING ANS NO SIDE EFFECTS. The company is Gallecto and they are doing a clinical trial soon in Europe and North America. Read the article  because it sounds…[Read more]

  • Jacki,  how do you know about the side effects? Is that with GLPG 1690?  I have a choice to do one or the other if I qualify and I believe that the BG00011 is a shorter trial. If you all received the newsletter today another interesting drug appears to be quite promising.

  • Cynthia, If I remember correctly one third get a placebo, one third get the drug and one third get the drug plus extra dosing or stronger dosing.

  • @lwaldschmidt

    I believe that your doctor/pulmonologist would have to set you up with the coordinator of the study in your area. If you go to GLPG 1690 you can find where and when the studies are taking place. My doctor at Cleveland Clinic told me that if become very ill during the study they sometimes will give you the drug if it is later in the…[Read more]

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