• @Dr. Andy Hall, Since it has been over 3 months since you tried the Wei products, have you had recent tests to show how much improvement was achieved?
    I am considering the treatment, but I don’t want to spend the money for nothing. Thanks!

  • Good morning, Charlene! I just purchased the new Inogen One, G-5. It has pulse dose up to 6, but it only weighs about 8 lbs with a double battery, which lasts up to 13 hours on lowest setting. I use 6 setting when walking around, so I only get about 3 hours, but just sitting around, I can use 2. It is a great improvement over my Inogen 2,…[Read more]

    • Hi Lynn,

      So nice to hear from you, thanks for the update! I’m so happy to hear that you’re pleased with the new Inogen One machine. I am impressed that it can last 13 hours, even on the lowest setting, that is great news! I bet it is a huge improvement from the previous one. Where are you going to take it first? 🙂 I just called the airline I am…[Read more]

  • Lynn Schmitt posted a new activity comment 3 months, 4 weeks ago

    Hi, Charlene!
    I am going to San Diego in 6 weeks. I have an Inogen One G2, which weighs about 7:5 pounds. I am on 4 limit oxygen when active. My POC goes to 6 pulse. How do you take your trips and carry around your POC? I am thinking about ordering a backpack for the Inogen, but I am afraid that it will be too heavy with the double battery.…[Read more]

    • Hi Lynn!

      Oh that is very exciting – I’ve never been to San Diego, but I’d love to go! Enjoy your trip! 🙂

      Good question re: carrying around your POC. I have the SimplyGo Respironics machine and while it is easy to travel with, being FAA approved for airlines, it is heavy and that is the only complaint I have about the POC I use. Thankfully it…[Read more]

  • Lynn Schmitt posted an update 4 months ago

    @charlene-marshall, Could you please tell me what number of O2 you have to use with your POC? And what number do you use for exertion on an oxygen tank?

    • Hi @lynn-schmitt, nice to hear from you, thanks for writing! Sorry about the delay in getting back to you – things are a bit chaotic here. Sure, I usually use 4LPM during exertion while using my POC, and only 2 at rest. I find my needs are higher while using my tanks, though not sure why. Maybe the quality of the 02? I find with my tanks I am…[Read more]

      • Hi, Charlene!
        I am going to San Diego in 6 weeks. I have an Inogen One G2, which weighs about 7:5 pounds. I am on 4 limit oxygen when active. My POC goes to 6 pulse. How do you take your trips and carry around your POC? I am thinking about ordering a backpack for the Inogen, but I am afraid that it will be too heavy with the double battery.…[Read more]

        • Hi Lynn!

          Oh that is very exciting – I’ve never been to San Diego, but I’d love to go! Enjoy your trip! 🙂

          Good question re: carrying around your POC. I have the SimplyGo Respironics machine and while it is easy to travel with, being FAA approved for airlines, it is heavy and that is the only complaint I have about the POC I use. Thankfully it…[Read more]

  • This sounds promising. I have HP, and I have scarring.

  • Lynn Schmitt posted an update 5 months ago

    @Susan Ho Witt
    You keep mentioning your a backpack, – what kind is it – I am interested if it is contuous flow. Also, did I understand correctly that you use a riding lawnmower , but don’t use your backpack? And how long do you go with your o2 down in the 80’s?
    I know I am asking a lot, but I am constantly searching for better solutions – I h…[Read more]

  • @betty-edwards
    I don’t know the answer to your question, but I would really like to know also. Charlene, can you or some doctor answer Betty’s question about O2 saturation dropping into low 80’s for a couple of hours each day? Please someone respond!
    Thanks,
    Lynn Schmitt

  • Lynn Schmitt posted a new activity comment 6 months ago

    Denny, do you have scarring and are you on O2?

    • Hi Lynn, yes I have scarring but my O2 is still up around 98/99. My DLCO is my bad number where it is hard to get my oxygen to my organs and release carbon dioxide.

  • @tmoriarty, I took three treatments which cost me $270. I emailed him Dr. Hall’s protocol, and we did 2 treatments the next week and an additional 2 treatments the third week (at only $45 per treatment). I went on vacation for 3 weeks, but I have not been back. I saw no improvement at all, as John Styles did. I am debating whether to go b…[Read more]

    • All of the lung diseases involve scarring and that it what has to be treated. Maybe John is getting helped by serrapeptase…

      • Denny, do you have scarring and are you on O2?

        • Hi Lynn, yes I have scarring but my O2 is still up around 98/99. My DLCO is my bad number where it is hard to get my oxygen to my organs and release carbon dioxide.

  • @petergoodwin.
    I take pro tonic, but I very rarely had indigestion before I started taking Cellcept. I know PPi’s have A bad name, but this works for me

  • @Terry Moriarty. You have hypersensitivity pneumonitis, so have you seen results and how many treatments before you saw improvement?

  • @ JackBlum. If you have already been accepted for a lung transplant when you are bad enough, does this mean you have already had the various tests required?

  • In reply to your new laser therapy doc, may I suggest that it be separated into categories of lung disease, specifically IPF and CHP. I have had some treatments at regular intervals and sporadically, too. I have yet to see any improvement in my O2 at rest. Maybe I need to give it another try. But somehow, I think IPF gets the best results.

  • I am having trouble reading the posts on this forum. The parameters allow on about 2-3 words per sentence, making the post long and very, very narrow. Sometimes it isn’t even that wide. Do you know what the problem is and how I can fix it?

    • Hi @lynn-schmitt, I’m working hard on this, I promise! I have a conference call scheduled with the other forum moderators tonight to ascertain if this is a website issue (ie. more global) or if it is isolated to the PF site only. If the latter, then it might just be a setting we can address. There are about 8 other regular issues too that we’re…[Read more]

    • Hi @lynn-schmitt,

      This was one of the problems/errors I brought up in the conference call tonight and other moderators of the forums haven’t been told this is a problem for their users. However, I can see it on my PC too so I know what you mean! I am sending it to one of our tech members to see if there is a way to straighten this sound – sounds…[Read more]

  • Denny and Profile picture of Lynn SchmittLynn Schmitt are now friends 9 months ago

  • Lynn Schmitt posted a new activity comment 9 months ago

    @Denny Eliassen
    If I understand correctly, you are not on oxygen, since it would be hard to play hockey. Do you have lung fibrosis, or interstitial lung disease?

    • Hi Lynn. I was diagnosed wth IPF 2 years ago this month, however I knew I had it earlier because of my stamina playing hockey and I almost quit when I could hardly catch my breath when coming of the ice. After my blood tests both doctors agreed that I had usual interstitial pneumonitis, one at Cleveland Clinic know by the scarring pattern. I had…[Read more]

  • Lynn Schmitt posted a new activity comment 9 months ago

    Since the word fibrosis means scarring or thickening of tissue, how can you have Pulmonary Fibrosis without scarring in your lungs? Seems strange to me.

    • Hi @lynn-schmitt, good question! I don’t really understand a lot of the medical details regarding IPF/PF but from my understanding, if you don’t have fibrosis in your lungs, you don’t have IPF/PF but rather some kind of interstital lung disease (ILD). There are 200+ kinds of ILDs, lots of which aren’t fibrotic in nature but much have damage to the…[Read more]

  • Lynn Schmitt posted an update 9 months ago

    I forgot to add that I am on vacation and left my Protonics at home. I have had only one small episode of indigestion since starting the cbd oil 2 weeks ago.

  • Lynn Schmitt posted an update 9 months ago

    I have been using the cbd oil, and that has helped with my acid reflux. I have been eating pineapple and juice since Saturday. I hope it works!

  • Lynn Schmitt posted an update 9 months ago

    This is a question for Denny. Before you took the Wei products, were your lung scarred enough to require oxygen?

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