Biography

Name

Michael
Nickname

miked
Gender

Male
Relationship

Patient
Short Bio

Diagnosed in 2019, familial PF, 5 family members have PF. Genetic testing found short telomere syndrome. Getting testing completed to be eligible for transplant when that time comes. Living life to its fullest every day.
Type of Diagnosis

familial/genetic PF
Treatment / Medical Facility

Yale University in CT and Brigham and Womens/Mass General in Boston
Current medication regimen

Esbriet, Stiolto Respimat inhaler, nasal spray and allergy meds for post nasal drip
Lung transplantation status

currently in evaluation process
Best advice for PF symptom management

Rest, restrict dairy, weight management and exercise to keep in the best condition possible.
Are you currently taking an anti-fibrotic medication?

yes
How did you find us?

PF News Website
How long have you or the person that you are caring for had PF?

3 years
Privacy Policy and Terms of Use

I agree

Report

Harassment or bullying behavior
Contains mature or sensitive content
Contains misleading or false information
Contains abusive or derogatory content
Contains spam, fake content or potential malware

Block Member?

Please confirm you want to block this member.

You will no longer be able to:

  • See blocked member's posts
  • Mention this member in posts
  • Invite this member to groups
  • Message this member
  • Add this member as a connection

Please note: This action will also remove this member from your connections and send a report to the site admin. Please allow a few minutes for this process to complete.

Report

You have already reported this .