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Biography
Name
Karla
Nickname
nessaleah
Year of Birth
1971
Gender
Female
Location
Central California
Relationship
Patient
Short Bio
I’m 49 and was diagnosed with Fibrotic NSIP in 2018. I’m dependent on supplemental oxygen and still work full time on education. Fairly stable but still don’t feel well.
Treatment / Medical Facility
Stanford
Current medication regimen
Immunosuppressants
Lung transplantation status
considering later
Supplemental Oxygen
yes
Best advice for PF symptom management
Get emotional support.
Are you currently taking an anti-fibrotic medication?
no
How did you find us?
Other
How long have you or the person that you are caring for had PF?
3+ years
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