@nimrod
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Karen Boettin. replied to the topic Dealing with Side Effects in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 8 months ago
I also take gabapentin at night no side effects .
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Karen Boettin. replied to the topic Passing along what is working for me. in the forum Ofev (Nintedanib) 1 year, 9 months ago
Have your Dr lower your dose..I had too.
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Karen Boettin. replied to the topic Systemic Enzymes, with or without prescription anti-fibrotics in the forum Diagnosis Information and General Questions 1 year, 9 months ago
What are you taking I can’t quit puking a lot on the morning dose takes about 2 hours thx
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Karen Boettin. replied to the topic Franklin Price ♥️ in the forum In Loving Memory 2 years ago
So sorry to hear this…He’s breathing easy now.
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Karen Boettin. replied to the topic Leg muscle weakness side effect of OFEV in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 1 month ago
I don’t have that side effect still puking a couple of times a week on 100 x2
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Karen Boettin. posted a new activity comment 2 years, 5 months ago
I have great Dr’s I go to northwestern downtown Chicago.Where are you at?
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Karen Boettin. posted a new activity comment 2 years, 5 months ago
I’ve had it for about 20 years, it started with Raynauds .I’m on 2 liters .i.e. Taking ofev now to slow down the fibrosis in my lungs.
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Karen Boettin. replied to the topic Family Member Refuses Medications in the forum Esbriet (Pirfenidone) 2 years, 8 months ago
It really is a personal choice.I went thru prednisone at first…then Imuran lasted 3 Months got puking sick then cytoxan ,finally cellcept for 3 yrs.I wish I had only tried the cellcept but that’s my opinion.I am on oxygen but only since starting the cellcept.I am now taking ofev it is a drug made for this disease which they didn’t have years…[Read more]
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Karen Boettin. replied to the topic Just got approved for Ofev in the forum Ofev (Nintedanib) 2 years, 11 months ago
I just started taking Ofev 2 1/2 weeks ago .It has now been approved for an ILD which is what I have from my numerous auto immune problems.I’m having trouble with nausea every couple of days but your answers have helped me .thx
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Karen Boettin. replied to the topic Eastern Medicine alternative in the forum Diagnosis Information and General Questions 3 years, 2 months ago
Could you post the soup recipe.I’ve been do ing laser and feel it has helped.
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Karen Boettin. replied to the topic Laser Treatment. Whats going on? in the forum Using Our Forums 3 years, 2 months ago
I stopped treatment for 3 weeks while in Florida and expected to start again but my Mom got sick and I’m stuck away with her for weeks now .She is 94 and can’t be left alone now.She sadly probably will never be able to be alone like she was before.I not close enough to see my Dr to get treatment.I still feel better but with this covid 19 I guess I’m safer.
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Karen Boettin. replied to the topic Laser Treatment. Whats going on? in the forum Using Our Forums 3 years, 2 months ago
I’ve had around 50 treatments down to twice a week and I feel it has helped me a lot with my ability to go without oxygen .ex ample I can walk to my bathroom without o2 now and stay in the 90’s.
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Karen Boettin. replied to the topic Gabapentin For IPF-Related Cough? in the forum Diagnosis Information and General Questions 3 years, 7 months ago
I take 900 mg a day for my cough .It stopped it almost immediately.
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Karen Boettin. replied to the topic Laser Therapy Part III in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 9 months ago
I am seeing a Chiropractor for laser treatments and am doing well. I feel it is really helping me .My oxygen levels go up to 99 after treatment and usually remain above 96. I walked on the treadmill without oxygen for 6minutes at 1.5 mph it was unbelievable…I’m going to really have to hussle on my next 6min walk or they could take away my oxygen…[Read more]
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Karen Boettin. replied to the topic My Unexpected Sleep Aid: A Weighted Blanket in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 9 months ago
I bought a weighted blanket and I love it but unfortunately it hasn’t helped my sleep.
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Karen Boettin. posted an update 3 years, 11 months ago
I’ve had15 laser treatments following Dr Hall protocol.I walked 8min at 1.5 mph and never tell bellow 92 .I am on oxygen at 2 liters .So I showed improvement. I am not going to have treatments for a month because I’m traveling.
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Karen Boettin. replied to the topic Dealing with laughter (yes, you read that correctly.) in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 11 months ago
I cough hard when laughing and get light headed .I tell my kids and grandkids jokenly that they are trying to kill me.
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Karen Boettin. became a registered member 4 years ago
Hi karen
We are lucky to still be alive as this disease takes some people real early my doctor is really not up to the lazzer i will be talking g to him on monday no office visits with this virus but he was the one who realized what i had one doctor tried puffers and said i do not know what this is goodbye . I was shocked but luckily i found dr…[Read more]
I have great Dr’s I go to northwestern downtown Chicago.Where are you at?