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	<title>Pulmonary Fibrosis News Forums | Susan o | Activity</title>
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				<title>Susan o posted an update: Was diagnosed 4 years ago. Took Ofev most of the time.  [&#133;]</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/39320/</link>
				<pubDate>Fri, 30 Jun 2023 22:45:01 -0500</pubDate>

									<content:encoded><![CDATA[<p>Was diagnosed 4 years ago. Took Ofev most of the time.  Then had other medical issues and put on drug also affecting liver.  Which do<br />
I choose?  Doc’s not much help.  I’m<br />
Putting my faith in God.  I switch off n on with drugs &#8211; not sure what is helping/working. </p>
<p>As I am sure we all do &#8211; I pray for my miracle.  I have always traveled/flown but&hellip;<span class="activity-read-more" id="activity-read-more-39320"><a href="https://pulmonaryfibrosisnews.com/forums/activity/p/39320/" rel="nofollow"> Read more</a></span></p>
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				<title>Susan o replied to the discussion Has anyone tried the INOGEN TAV(tidal assist ventilator? in the forum Welcome Lounge</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/has-anyone-tried-the-inogen-tavtidal-assist-ventilator/#post-33576</link>
				<pubDate>Wed, 16 Nov 2022 19:57:39 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/has-anyone-tried-the-inogen-tavtidal-assist-ventilator/#post-33576"><span class="bb-reply-lable">Reply to</span> Has anyone tried the INOGEN TAV(tidal assist ventilator?</a></p> <div class="bb-content-inr-wrap"><p>Does anyone have the portable inogen oxygen. I was hoping someone from inogen could come to house and show me choices etc but apparently you have to buy it and if u don’t like u can return within 30 days.<br />
If u use inogen please let me know if you travel with it etc. I am on 3 liters right now.<br />
Many thanks.</p>
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				<title>Susan o posted an update: Not sure what I’m suppose to receive from this site. [&#133;]</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/35550/</link>
				<pubDate>Thu, 20 Oct 2022 21:09:34 -0500</pubDate>

									<content:encoded><![CDATA[<p>Not sure what I’m suppose to receive from this site. Don’t see any responses. </p>
<p>Maybe my responses just not worthy not  discussion.  </p>
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				<title>Susan o replied to the discussion Medications Making Me Feel Worse - Is It Possible? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/medications-making-me-feel-worse-is-it-possible/#post-33186</link>
				<pubDate>Thu, 29 Sep 2022 20:08:09 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/medications-making-me-feel-worse-is-it-possible/#post-33186"><span class="bb-reply-lable">Reply to</span> Medications Making Me Feel Worse - Is It Possible?</a></p> <div class="bb-content-inr-wrap"><p>I am on Ofev.  My Pulmongist told me an inhaler will not help.  I have a terrible cough all day with lots of phlegm. I    Take an awful<br />
Lot of cough drops during the day to help with the cough.</p>
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				<title>Susan o replied to the discussion Split Ofev doseages in the forum Ofev (Nintedanib)</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/split-ofev-doseages/#post-33000</link>
				<pubDate>Thu, 01 Sep 2022 20:01:27 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/split-ofev-doseages/#post-33000"><span class="bb-reply-lable">Reply to</span> Split Ofev doseages</a></p> <div class="bb-content-inr-wrap"><p>I had a very hard time with the 150 mg so my doc put me on the 100.  I did much better. At times I am still sick with the 100 for a stretch so when I spoke with my doc &#8211; he said I know my own body n how it reacts so I could try just 1 a day when symptoms got bad.  It helped .  I normally go with the twice a day but if the nausea n diarrhea get&hellip;<span class="activity-read-more" id="activity-read-more-34985"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/split-ofev-doseages/#post-33000" rel="nofollow"> Read more</a></span></p>
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				<title>Susan o replied to the discussion Sleeping with head elevated in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/sleeping-with-head-elevated/#post-32639</link>
				<pubDate>Fri, 15 Jul 2022 19:49:00 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/sleeping-with-head-elevated/#post-32639"><span class="bb-reply-lable">Reply to</span> Sleeping with head elevated</a></p> <div class="bb-content-inr-wrap"><p>I sleep all over the place.  On my back, sides, stomach n even at bottom<br />
Of bed. I wake up several times n change positions. Sometimes I use 1 pillow , sometimes two n if cough gets bad I prop myself up in almost sitting position with 3 pillows.   Not the best night’s sleep<br />
But I when I wake up at 5 or 6 I move to the couch n get up by 7</p>
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				<title>Susan o posted a new activity comment</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/27536/#acomment-27561</link>
				<pubDate>Sat, 05 Jun 2021 16:20:41 -0500</pubDate>

									<content:encoded><![CDATA[<p>Thank you.  I’m looking forward to reading how other Ipf patients are doing.  I was diagnosed about 2 1/2 years ago</p>
				<strong>In reply to</strong> -
					<a href="https://pulmonaryfibrosisnews.com/forums/members/olivoseashellsyahoo-com/" data-bb-hp-profile="11169" rel="nofollow">Susan o</a> became a registered member					]]></content:encoded>
				
				
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				<title>Susan o became a registered member</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/27536/</link>
				<pubDate>Fri, 04 Jun 2021 14:35:52 -0500</pubDate>

				
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