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Susan o

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@olivoseashellsyahoo-com

Not sure what I’m suppose to receive from this site. Don’t see any responses. Maybe my responses just not worthy not discussion. View
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    Susan o replied to the topic Has anyone tried the INOGEN TAV(tidal assist ventilator? in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 3 weeks ago

    Does anyone have the portable inogen oxygen. I was hoping someone from inogen could come to house and show me choices etc but apparently you have to buy it and if u don’t like u can return within 30 days.
    If u use inogen please let me know if you travel with it etc. I am on 3 liters right now.
    Many thanks.

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    Susan o posted an update 3 months, 2 weeks ago

    Not sure what I’m suppose to receive from this site. Don’t see any responses.

    Maybe my responses just not worthy not discussion.

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 3 months, 2 weeks ago

      Hi @olivoseashellsyahoo-com , sorry to hear you aren’t receiving any responses to your questions. Was there a particular post you were hoping others would comment on? If so please let me know and I’ll make sure there’s nothing on the back end preventing others from seeing it (we do have our spam settings high because of the volume of spammers that…[Read more]

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    Susan o replied to the topic Medications Making Me Feel Worse – Is It Possible? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months, 1 week ago

    I am on Ofev. My Pulmongist told me an inhaler will not help. I have a terrible cough all day with lots of phlegm. I Take an awful
    Lot of cough drops during the day to help with the cough.

  • Profile picture of Susan o

    Susan o replied to the topic Split Ofev doseages in the forum Ofev (Nintedanib) 5 months, 1 week ago

    I had a very hard time with the 150 mg so my doc put me on the 100.  I did much better. At times I am still sick with the 100 for a stretch so when I spoke with my doc – he said I know my own body n how it reacts so I could try just 1 a day when symptoms got bad.  It helped .  I normally go with the twice a day but if the nausea n diarrhea get re…[Read more]

  • Profile picture of Susan o

    Susan o replied to the topic Sleeping with head elevated in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 6 months, 3 weeks ago

    I sleep all over the place. On my back, sides, stomach n even at bottom
    Of bed. I wake up several times n change positions. Sometimes I use 1 pillow , sometimes two n if cough gets bad I prop myself up in almost sitting position with 3 pillows. Not the best night’s sleep
    But I when I wake up at 5 or 6 I move to the couch n get up by 7

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    Susan o posted a new activity comment 1 year, 8 months ago

    Thank you. I’m looking forward to reading how other Ipf patients are doing. I was diagnosed about 2 1/2 years ago

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    Susan o became a registered member 1 year, 8 months ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 8 months ago

      Welcome to the PF forums Susan, we’re happy to have you!

      • Profile picture of Susan o
        Susan o replied 1 year, 8 months ago

        Thank you. I’m looking forward to reading how other Ipf patients are doing. I was diagnosed about 2 1/2 years ago

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