Not sure I understand the question. Most transplant hospitals, to the best of my knowledge/experience only perform double lung transplants. A living donor cannot donate both his/her lungs as a donor and live. Maybe clarify your intent.

So sorry to hear of your experience with your Mother’s failed transplant. I was exceedingly fortunate to have my double lung transplant performed by a very experienced transplant team at Dignity Health, St. Joesph’s Hospital and Medical Center in Phoenix, Arizona in September of last year 2023. I was also aged 75 and except for advancing ILD,…

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I was diagnosed in early 2020. Was doing great until Christmas 2022. Had Covid, followed by penumoia followed by two rounds of chronic bronchitis. Three hospitalizations in a three month period. So using oxygen pretty much all the time. I went through the transplant protocol testing in 2021 and was considered too healthy to be on the… Read more

Possibly I’m the only misinformed member here. It would help those of us who are not versed in the IPF language to explain shorthand. Yes, I can Google it, but shouldn’t have to. Thank you.

I don’t think a pulmonary doctor would prescribe both medications for you.

Just my opinion. I would stay away from this or any other magic “cure””. The article quoted is four, (4) years old. One would think by now, if the claims from July 2019 are accurate, the company would have applied for FDA review and/or approval, I’m not aware they have. You can search Google all day for “cures” for IPF, you will come… Read more

I live in Phoenix, AZ., I am 75 years old, St Joseph’s Medical Center does transplants here, so does Mayo Clinic.  As someone who was accepted into the lung transplant pool, although my scores were  too high to be considered for placement on the list, I get re-evaluated every 90 days. My last evaluation was yesterday, and as expected my scores… Read more

Well, you’ve been diagnosed with a terminal disease, you’re taking medications that have undesirable side effects, short of a successful lung transplant you know about how long you may live. That is a good reason to be depressed. I talked to my doctor about it and he suggested trying an antidepressant. I’m taking Mirtazapine 15mg at bedtime.… Read more

Pattye,

Probably a dumb question. How do you take a shower with your oxygen connected? When I get in the shower with the cannula in my nose I always fear I’m going to get water in the oxygen tubes. Is there a secret or do I just need to learn to relax.  Thanks.

Donna,

What are you referring to?  Clinical trials or transplant?

I have an Imogen POC and a home based large OC that plugs into an electrical outlet. I’m happy with both but have a question.  For local trips, shopping, entertainment, etc. the Imogen is great, but I wonder about travel. It’s impractical to take the large, (40 lbs), OC to a hotel, onboard a ship, etc. So what do those of you who travel do?  The… Read more