Paul Caden

<span style=”color: #303030; font-family: open sans;”><span style=”font-size: 13px;”> I was diagnosed in August 2019 and have been taking Esbriet since Dec 2019.  ”Still here and kicking, ” like Karen  have less energy than before, but happy to have this forum to turn to for information and support, as well. Do lots of outdoor sports to keep th…[Read more]

I agree with Charlene that cold air hurts the lungs when I hike, cross ctry ski , skate etc in cold weather.

I am 70, have been on Esbriet since December 2019. Moderate but not overly bothersome side effects as mentioned above, thanks to evolution. My lung condition has deteriorated 10% in past yr but I still have 80% lung capacity and can still do Sports which I believe are important to help us breathe easier. When on Esbriet the sun is not your friend…[Read more]

Have been taking Esbriet now for one year. Briefly, you must always take it with a meal or a big snack or the nausea headaches tiredness Etc increase. Luckily evolution permits me to have a 90% normal lifestyle so far. Just went cross-country skiing today for the first time this year and noticed I had to stop more frequently to catch my breath but…[Read more]

I am very thankful to nature and evolution as my side effects resemble yours but to a much lesser extent. I always take a meal or a big snack beforehand and lots of water during the day but not at night as I would be waking up making two many trips to the washroom. Have you contacted the company nurses who do follow up I find they are very helpful…[Read more]

<span style=”color: #303030; font-family: open sans;”><span style=”font-size: 13px;”>I have been taking Esbriet for +6 mths since Dec 2020. An article in a prestigious French pharma journal influenced me not to try Ofev . I have had mild side effects 6 months after my full daily dose: insomnia, tummy upset, frequent bathroom visits and mood swings…[Read more]

have been taking Esbriet for 2 months now, few mild side effects (grumbling tummy, tired) also take about 6 glasses wine/week and 2 mthly blood tests have been fine. Will know if working at my March 3rd RDV, fingers crossed!

69 yrs young, in top shape until now, I will be starting Esbriet later this week and am quite nervous. Was diagnosed early Fall w IPF. Was going to take Ofev until I read this article (in French) from a VERY respected non pharma influenced, European website;

https://www.prescrire.org/Fr/202/1843/56008/0/PositionDetails.aspx

Basically it says;…[Read more]

Stu is right , having latest replies at start would be better and save time scrolling down