Paul Caden

I am in the same position as you but my strong belief in evolution and the good of other people as proven in sociobiology helps me face life with a strutted disease and not have to believe in one of the 2,800 man-made gods of History

Hello Annette, I read most of the replies and I would just like to add that I have had IPF for two and a half years and have been taking Esbriet 3x/day for most of the time. I push myself to do cardiovascular sports as much as I can such as cross-country skiing cycling skating hiking etc All in an effort to keep my lungs working.So far I am not on…[Read more]

I have been on esbriet for 2 years now and must admit that I take about 6 glasses of wine a week avg and have been lucky to have good liver tests. the one score which has being going down is DLCO, FVC etcetera have been fine do lots of sports and eat well hopefully I will stay healthy for several more years.

<span style=”color: #303030; font-family: open sans;”><span style=”font-size: 13px;”> I was diagnosed in August 2019 and have been taking Esbriet since Dec 2019.  ”Still here and kicking, ” like Karen  have less energy than before, but happy to have this forum to turn to for information and support, as well. Do lots of outdoor sports to keep th…[Read more]

I agree with Charlene that cold air hurts the lungs when I hike, cross ctry ski , skate etc in cold weather.

I am 70, have been on Esbriet since December 2019. Moderate but not overly bothersome side effects as mentioned above, thanks to evolution. My lung condition has deteriorated 10% in past yr but I still have 80% lung capacity and can still do Sports which I believe are important to help us breathe easier. When on Esbriet the sun is not your friend…[Read more]

Have been taking Esbriet now for one year. Briefly, you must always take it with a meal or a big snack or the nausea headaches tiredness Etc increase. Luckily evolution permits me to have a 90% normal lifestyle so far. Just went cross-country skiing today for the first time this year and noticed I had to stop more frequently to catch my breath but…[Read more]

I am very thankful to nature and evolution as my side effects resemble yours but to a much lesser extent. I always take a meal or a big snack beforehand and lots of water during the day but not at night as I would be waking up making two many trips to the washroom. Have you contacted the company nurses who do follow up I find they are very helpful…[Read more]

<span style=”color: #303030; font-family: open sans;”><span style=”font-size: 13px;”>I have been taking Esbriet for +6 mths since Dec 2020. An article in a prestigious French pharma journal influenced me not to try Ofev . I have had mild side effects 6 months after my full daily dose: insomnia, tummy upset, frequent bathroom visits and mood swings…[Read more]

have been taking Esbriet for 2 months now, few mild side effects (grumbling tummy, tired) also take about 6 glasses wine/week and 2 mthly blood tests have been fine. Will know if working at my March 3rd RDV, fingers crossed!

69 yrs young, in top shape until now, I will be starting Esbriet later this week and am quite nervous. Was diagnosed early Fall w IPF. Was going to take Ofev until I read this article (in French) from a VERY respected non pharma influenced, European website;

https://www.prescrire.org/Fr/202/1843/56008/0/PositionDetails.aspx

Basically it says;…[Read more]

Stu is right , having latest replies at start would be better and save time scrolling down