Pulmonary Fibrosis News Forums | Polly Kanto | Activity https://pulmonaryfibrosisnews.com/forums/members/pkanto/activity/ Activity feed for Polly Kanto. Sat, 04 Apr 2026 22:03:26 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 b4a65abafa341228b69ddca1ae2c615f Polly Kanto replied to the discussion Post-nasal Drip: Another Ailment to Deal With in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-nasal-drip-another-ailment-to-deal-with/#post-37711 Fri, 29 Nov 2024 23:34:41 -0600 Reply to Post-nasal Drip: Another Ailment to Deal With

I’ve had PF for almost 3 years. As my oxygen level gradually increased from 2 L to 6, I noticed an awful lot of PND, constantly having to take out my cannula and blow my nose. My pulmonologist started me with a palliative care nurse, and she said the problem is your nose is responding to having a foreign object in it, the cannula tubes, and is…

Read more

]]> 42a07c37b77ad3061d44f21102eb9fa1 Polly Kanto replied to the discussion Issue contacting BI Cares regarding OFEV in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/issue-contacting-bi-cares-regarding-ofev/#post-37682 Fri, 22 Nov 2024 22:53:42 -0600 Reply to Issue contacting BI Cares regarding OFEV

I called to re-order my prescription and we were told that they did not have my account information. Have been getting Ofev for over 2 1/2 years and never had a problem. They said that they were going with a new pharmacy and a lot of information got lost in the transfer. The first time we were on hold for an hour and a half, had to call again…

Read more

]]> 4cce32b9953ba877004c4e41010cfbf2 Polly Kanto replied to the discussion New user to Pirfenidone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/new-user-to-pirfenidone/#post-37067 Tue, 21 May 2024 20:33:22 -0500 Reply to New user to Pirfenidone

Hi Riley. My sister has IPF and tried Esbriet after being diagnosed at the Mayo Clinic four years ago. She said the medication “nearly killed her.” After seeing her pulmonologist again she went on Ofev and after going down from 150 mg to 100 mg is doing very well. A little over two years ago I was diagnosed with ILD, and went on Ofev. The 150…

Read more

]]> fb7c9b477b336f4ee362c206e2fdc150 Polly Kanto replied to the discussion Celcept / Mycophenolate use? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/celcept-mycophenolate-use/#post-37051 Thu, 16 May 2024 21:17:51 -0500 Reply to Celcept / Mycophenolate use?

Hi George. I was diagnosed with I LD a little over two years ago. In an attempt to get off a low daily maintenance of prednisone, I tried CellCept. I had a very bad reaction when I worked up to the highest dose of the day and had to stop taking it. After some time, I was advised to try it again and had the same results. I was just sick all…

Read more

]]> e79c819d44c5099abaa4a94f26d37f82 Polly Kanto became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/37674/ Wed, 01 Mar 2023 14:21:53 -0600 0