Hi Dawn –Although I’ve just started to use the Air Physio device and find it helpful, being also interested in the AiroFit device you referred to, are you able to please provide more details about it – e.g. full name of device and where is it available from?. Thanks

PaulP (Downunder OZ)

Hi – To all who have reported that taking Imodium for diarrhea control hasn’t worked, may I suggest that you should check that you are not fructose intolerant, as this also leads to diarrhea if you don’t watch what you eat.

I too have been on OFEV for quite some time with the usual bouts of diarrhea and nausea, but since discovering that I am… Read more

Hi Charlene

Thank you for all the work you do in supporting us with IPF etc.

Please find my response to survey re ‘Starting OFEV

How long after your diagnosis of PF/IPF did you start taking Ofev?

• Stated OFEV immediately on being diagnosed.

When you started Ofev, had your Doctor shared with you whether your PF/IPF

was mild, moderate… Read more

Hi Yoli
Having been diagnosed with IPF early last year I was put on OFEV initially but due to bad nausea and diarrhea, my Dr put me on Esbriet while being warned of possible skin irritation. After about 3 months I developed an itching problem, over many parts of my body as well as a horrible scaly skin condition on the back of my hands… Read more

Sorry to read about the death of your husband David- Our condolences to you and your family.
PaulP (from Oz.)

Likewise,  for 18 months, I have been on OFEV then Esbriet (due to frequent nausea and some puking) back on to OFEV again, after encountering horrible and unsightly skin rash, (which disappeared immediately when I stopped Esbriet) and have now been on OFEV for about 9 months (currently on 100mg x 2 daily).

During this time I have not… Read more

Hi All. Once again thank you to all for these blogs which I find are very interesting. For me personally, apart from the fact that almost in my adult life I’ve been very sensitive to smells emanating from certain things, like incense, or cigars (absolutely hate them, as they also trigger a headache) strong perfume and cigarette smoke, ever since… Read more

Hi – A big thanks to all who posted these blogs on this very important – but often neglected subject.

With myself being diagnosed with IPF in Jan 2020 – but thankfully not yet needing Oxygen, having often read that other IPF patients are having to use supplementary oxygen to get on with their life, as well as knowing that this will, most… Read more