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Paul Polidano replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 7 months, 2 weeks ago
Hi Charlene
Thank you for all the work you do in supporting us with IPF etc.
Please find my response to survey re ‘Starting OFEV
How long after your diagnosis of PF/IPF did you start taking Ofev?
- Stated OFEV immediately on being diagnosed.
When you started Ofev, had your Doctor shared with you whether your PF/IPF
was mild, moderate or…[Read more]
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Paul Polidano replied to the topic Fibrosis and Esbriet in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago
Hi Yoli
Having been diagnosed with IPF early last year I was put on OFEV initially but due to bad nausea and diarrhea, my Dr put me on Esbriet while being warned of possible skin irritation. After about 3 months I developed an itching problem, over many parts of my body as well as a horrible scaly skin condition on the back of my hands -almost…[Read more] -
Paul Polidano replied to the topic David Swain – a brave fight against IPF in the forum In Loving Memory 2 years ago
Sorry to read about the death of your husband David- Our condolences to you and your family.
PaulP (from Oz.) -
Paul Polidano replied to the topic Leg muscle weakness side effect of OFEV in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 1 month ago
Likewise, for 18 months, I have been on OFEV then Esbriet (due to frequent nausea and some puking) back on to OFEV again, after encountering horrible and unsightly skin rash, (which disappeared immediately when I stopped Esbriet) and have now been on OFEV for about 9 months (currently on 100mg x 2 daily).
During this time I have not encountered…[Read more]
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Paul Polidano replied to the topic Olfactory changes with IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 1 month ago
Hi All. Once again thank you to all for these blogs which I find are very interesting. For me personally, apart from the fact that almost in my adult life I’ve been very sensitive to smells emanating from certain things, like incense, or cigars (absolutely hate them, as they also trigger a headache) strong perfume and cigarette smoke, ever since I…[Read more]
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Paul Polidano replied to the topic No Oxygen and extremely bad breathing in the forum Diagnosis Information and General Questions 2 years, 1 month ago
Hi – A big thanks to all who posted these blogs on this very important – but often neglected subject.
With myself being diagnosed with IPF in Jan 2020 – but thankfully not yet needing Oxygen, having often read that other IPF patients are having to use supplementary oxygen to get on with their life, as well as knowing that this will, most likely…[Read more]
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Paul Polidano posted a new activity comment 2 years, 1 month ago
OK – Noted
Thanks, Christie -
Paul Polidano posted a new activity comment 2 years, 1 month ago
Hi, Christie -a late thank you for the welcome to your IPF forums which I’ve come across shortly after myself was diagnosed with IPF, in January last year.
Apart from also helping to run our own Australian Lung Foundation peer support group forum for IPF etc., (called IPufF – where we meet via Zoom in a monthly basis) I am also an avid reader of…[Read more] -
Paul Polidano became a registered member 2 years, 1 month ago
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Welcome to the PF forums Paul, we are happy to have you!
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Hi, Christie -a late thank you for the welcome to your IPF forums which I’ve come across shortly after myself was diagnosed with IPF, in January last year.
Apart from also helping to run our own Australian Lung Foundation peer support group forum for IPF etc., (called IPufF – where we meet via Zoom in a monthly basis) I am also an avid reader of…[Read more]-
Paul,
It’s great that you’ve found so many ways to be involved and have surrounded yourself with a community online. I think it’s really important to have supportive people to commiserate with and learn from. Thanks for checking in and reading up. Looking forward to seeing you around the forums 🙂-
OK – Noted
Thanks, Christie
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Paul,
It’s great that you’ve found so many ways to be involved and have surrounded yourself with a community online. I think it’s really important to have supportive people to commiserate with and learn from. Thanks for checking in and reading up. Looking forward to seeing you around the forums 🙂
OK – Noted
Thanks, Christie