Thank you for the in-depth report. It was extremely helpful to me as I have ipf with very similar conditions as your dad had. When one has a terminal disease it seems we wonder what the end will be like. The progress your dad had is what I am going through right now. It I move my lips I breath hard. Okay a little exaggeration but I do find it h…[Read more]
Oh I forgot to mention that UCD in Sacramento Ca is having two studies. One for hypertension and the other for Bacterial.
Also they have a new device on the market that gives a blast of oxygen when it is needed. I am researching these things as of now. I just found out Wednesday.
It’s Bill again with an update.
I am in pulmonary rehab. I am half way through and although it hasn’t helped my breathing much it has taught me to slow down more. I found it difficult to slow down but with the constant checking of my oxygen levels and my work out I was able to determined how much to slow down as I have always been…[Read more]
There is no direct connection to ipf because of Agent Orange. (dioxin)
There was a veterans that had their compensation granted anyway because it is a chemical and there is data that says chemicals can cause IPF. Weak I know but a letter from your doctor stating there may be a connection helps. Anyway I should know October or November if…[Read more]
As you know that is why it is called ideopathic. 🙂 There was two cases approved for F105 pilots because of the 7808 engine oils that gave out a mist. I also was in contact with the same oils by working on the same jet engines but it looks like they are looking the other way on this one.
You would think with all of the people with ipf they could…[Read more]
Please see response on Charlene’s reply as I pushed the wrong reply button. (it won’t happen again).
here is what I wrote:
I have ipf and have been working with VA on getting compensation. I have several documents that do not directly tie dioxins to agent orange but do say that it may cause lung diseases being as it is a chemical.. If your…[Read more]
I have ipf and have been working with VA on getting compensation. I have several documents that do not directly tie dioxins to agent orange but do say that it may cause lung diseases being as it is a chemical.. If your husband was in Vietnam it is a very good chance he was affected. I also found a VA claim that has approved compensation for IPF.…[Read more]
Yes to all of the above.
The problem is, I am trying different medications to stifle the incessant cough which may be a contributor. I really get foggy with gabapentin but it seems to help a little. I quit it because of the fogginess. I am and present trying Tessalon but again it doesn’t seem to be very effective although I still get fogginess to…[Read more]
That is weird because I am opposite. I do not tolerate cold well. I have to wear a jacket to any functions I go to if the room is air conditioned even in my house. I even have to drink warm water to keep from coughing. I do have a hot flash ( I know I am a guy) when I get into a coughing spell that only last a minute. I do although suffer through…[Read more]
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