Just a heads up for those hitting 6lpm. Mu pleumonologist switched me over to liquid oxygen. Be3n a nightmare ever since. Can’t imagine why they do this.

My experiences with this so far; these things leak, I got two supply tanks and two portable devices.

Every time I have filled from big tank first my backup would be empty. Just leaked out…

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I have had pf since 2011 five years ago I moved to Aurora, CO the VA here , at that time, was almost brand new. My gp was great. My oncologist was good, but my pleumonologist was slack. After a year of nothing she finally sent me for a pft . About six months later she said ” there’s nothing more we can do for you.” I got a new pleumonologist…

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I have been fighting pf since 2011. I moved to Colorado 5 years ago. I went with VA because at time it was great. My pleumonologist told me after a year there was no more they could do for me. This year I got new doctor. He has run a few tests and last visit mentioned infusion. He dropped that after a consult. Now he wants me to do a sleep…

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I was put on oxygen four years ago. I noticed when I did air that my stamina was down. I laid off air unless I really needed it. My new put me on 5liters. This has drained my ability to do things.

My question is exactly what am I doing by not following Drs. Instructions. Will my low oxygen cause more destruction? I have been fighting it for 10 years.

After reading some posts I am wondering do drs give drugs to calm this down.

I’m a vv with exposure to agent orange. Mine started with prostate cancer that spread to my lungs. A year later,2012, I had pf.

I moved to CO in 2019. New lung Dr. Told me in 2021 they could do no more for me. I don’t even know what they did beside run tests. I’ve… Read more