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Rose Sottilo replied to the topic Intentionally Avoiding Hand Shakes as a Patient with PF in the forum Pulmonary Fibrosis Awareness & Advocacy 2 years, 9 months ago
Hello, I am very concerned about wheregerms. I wear a little paper mask if I have to go to a crowded enviorment, like a waiting room. I keep one in my purse. I do shake hands, but pull out my little sanitizer bottle after to clean up and offer it to the other person and tell them that I’m germafobic and that is usually enough explanation, I w…[Read more]
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Rose Sottilo replied to the topic Do You Identify With Being 'Disabled'? in the forum Diagnosis Information and General Questions 2 years, 10 months ago
I do identify as disabled. I’m over 3 years into PF, with Cardiac issues too. I use my parking placard. I live in South Texas and the heat combined with the walking causes angina episodes. I hate having to stop to rest and let the nitroglycerin tablets do their magic so I park close. I try to get things done early in the day before it heats up. …[Read more]
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Rose Sottilo replied to the topic Having Someone Accompany You to Medical Appointments in the forum Upcoming Medical Appointments: Q&As 2 years, 11 months ago
I always have either hubby or SIL with me for all pulmonologist and cardiologist appointments. They are there to take notes and ask for answers to questions I have writen down in the weeks prior to the appointments. It helps a lot, I tend to forget about the details, but they have it all down on paper.
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Rose Sottilo replied to the topic Hospital Admissions Essentials in the forum Caregivers and Spouses 2 years, 11 months ago
Katie, my husband and I have a GO BAG also. He and I are heart patients, and my PF. All together in less than one year we have been admitted over a dozen times.
That GO BAG always has our up to date meds lists and medical history plus advance directives .
A portable phone charger is the best. You don’t have to worry about a charger cord being…[Read more]
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Rose Sottilo replied to the topic Exercising When You Have a Chronic Disease in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 11 months ago
Hello y’all,
I have been as healthy lately as I have been in 2 years. However I was having frequent angina attacks that I was treating with gas ex. Needless to say that didn’t work well and ended up with 4 stents and another blockage that because of my lungs, no bypass, we have to treat with drugs, diet, and exercise. I’m starting a Cardiac…[Read more]
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Rose Sottilo replied to the topic Medformin in the forum Living with Pulmonary Fibrosis: 50+ 2 years, 11 months ago
I have had PF for over 3 years. I was diagnosed as prediabetic in January 2019, Also had a pneumothorax same time. Surgeon patched up lung. I started on metformin then. Just recently did my CT scan and lung capacity appointment and was told no progression, and my lung capacity is much better. I don’t know if the metformin is responsible for the…[Read more]
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Rose Sottilo posted a new activity comment 2 years, 11 months ago
Do you have a topic?
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Rose Sottilo posted a new activity comment 2 years, 11 months ago
Thanks Mark
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Do you have a topic?
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Hello Rose, you are so welcome. I will be posting a topic later today but you are more than welcome to bring in one of your own topics for discussion or you can search through the forums and choose a topic you are interesested in. You can ask questions pertaining to the topic, answer a reply, or provide your own statement on the topic. Feel free…[Read more]
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Rose Sottilo became a registered member 2 years, 11 months ago
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Hello Rose, thank you for joining your pulmonary fibrosis forum. Welcome!
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Thanks Mark
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Do you have a topic?
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Hello Rose, you are so welcome. I will be posting a topic later today but you are more than welcome to bring in one of your own topics for discussion or you can search through the forums and choose a topic you are interesested in. You can ask questions pertaining to the topic, answer a reply, or provide your own statement on the topic. Feel free…[Read more]
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Hello Rose, you are so welcome. I will be posting a topic later today but you are more than welcome to bring in one of your own topics for discussion or you can search through the forums and choose a topic you are interesested in. You can ask questions pertaining to the topic, answer a reply, or provide your own statement on the topic. Feel free…[Read more]