Pulmonary Fibrosis News Forums | Merle Sweet | Activity https://pulmonaryfibrosisnews.com/forums/members/sandford/activity/ Activity feed for Merle Sweet. Mon, 13 Apr 2026 15:27:08 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 359517ff4a87f75b7f54b495f58f1666 Merle Sweet replied to the discussion Symptons of UIP in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/symptons-of-uip/#post-36101 Tue, 31 Oct 2023 19:30:33 -0500 Reply to Symptons of UIP

I am replying because I immediately saw “Symptoms UIP” in your heading. I am an 80 year-old male who was diagnosed with UIP in 2014 and have progressed downward over the nine years to the point I am now on supplemental oxygen full time because any exertion renders me breathless and produces substantial pressure across my entire chest. A few…

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]]> 85dc43cdaee854384ed227a1121eeac6 Merle Sweet replied to the discussion Coughing aftr meals in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/coughing-aftr-meals/#post-29167 Thu, 08 Jul 2021 20:10:24 -0500 Reply to Coughing aftr meals

I was diagnosed with Usual Interstitial Pneumonia in October 2014. I do not qualify for oxygen yet, but am very short of breath during any exertion. For the first few years I had PFTs every six months, but every three months during the last three years. My results show that I plateau at a given level and remain there for approximately 9 to… Read more

]]> c2e03136b0f4377136a8279aee855620 Merle Sweet replied to the discussion The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/pf-patients-experience-prednisone/#post-24840 Sun, 05 Jul 2020 16:07:15 -0500 Reply to The IPF Patient's Experience with Prednisone

<span class=”” style=”caret-color: #000000; color: #000000; font-family: Helvetica; font-size: 14px;”>Hi Sue,</span>
<div class=”” style=”caret-color: #000000; color: #000000; font-family: Helvetica; font-size: 12px;”><span class=”” style=”font-size: 14px;”>Thank you for responding to my posting. </span></div>
<div class=”” style=”caret-color:… Read more

]]> d5c63bf7a82a252847b869e4508553b3 Merle Sweet replied to the discussion The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/pf-patients-experience-prednisone/#post-24841 Sun, 05 Jul 2020 15:55:42 -0500 Reply to The IPF Patient's Experience with Prednisone

Hi Charlene,

I will definitely report back after I visit with my pulmonologist on August 18.

Merle

 

 

]]> 8fab47666feba0015478e3c67a229864 Merle Sweet replied to the discussion The IPF Patient's Experience with Prednisone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/pf-patients-experience-prednisone/#post-24817 Sun, 05 Jul 2020 03:07:58 -0500 Reply to The IPF Patient's Experience with Prednisone

Hi Charlene,

I was diagnosed with IPF in October 2014 and tried Esbriet not long after, but was unable to tolerate side effects of nausea and diarrhea. My pulmonologist suggested reducing the dosage, but side effects remained. I decided to stop taking Esbriet because quality of life was more important to me than duration of life.

My IPF… Read more

]]> ccc6a421a348623a0c3083730909ade8 Merle Sweet replied to the discussion Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/laser-therapy-results/#post-21589 Thu, 10 Oct 2019 07:23:25 -0500 Reply to Laser Therapy Results

After reading many positive responses on this thread to laser treatments I am thrilled to announce I have elected to participate in Dr. Hall’s laser study. I selected a chiropractor who has extensive experience using her clinic’s programmable class IV laser on neuropathy patients and she is delighted to do her part in the study. I am confident… Read more

]]> a42ce04075626de7157b0fec8acede37 Merle Sweet replied to the discussion IPF patient wonders if current symptoms are IPF related or not in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/ipf-patient-wonders-if-current-symptoms-are-ipf-related-or-not/#post-18759 Fri, 26 Apr 2019 13:53:28 -0500 Reply to IPF patient wonders if current symptoms are IPF related or not

A huge thank you to both Steve and Lawrence for submitting your respective stories. Steve, I am eager to talk with my pulmonologist about the interventions you mentioned. It is nice to know about the possibility of several options. Lawrence, my wife provides magnificent support, but I feel guilty about transferring my lifetime role of caregiver… Read more

]]> 4bc4342444329cbdbdf7aa9acb0c6eaf Merle Sweet replied to the discussion IPF patient wonders if current symptoms are IPF related or not in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/ipf-patient-wonders-if-current-symptoms-are-ipf-related-or-not/#post-18696 Tue, 23 Apr 2019 16:42:06 -0500 Reply to IPF patient wonders if current symptoms are IPF related or not

Thanks Rob, I will talk to my pulmonologist about Mucomyst.

Merle

]]> 4093b185f3749ccec0f3fbc130bba4aa Merle Sweet replied to the discussion IPF patient wonders if current symptoms are IPF related or not in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/ipf-patient-wonders-if-current-symptoms-are-ipf-related-or-not/#post-18679 Mon, 22 Apr 2019 01:58:09 -0500 Reply to IPF patient wonders if current symptoms are IPF related or not

Thank you for commenting Mark. I will be calling tomorrow to seek another pulmonary function test. Merle

]]> 789f122b9cee9fd13f6a9e6bda6dafdc Merle Sweet started the discussion IPF patient wonders if current symptoms are IPF related or not in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/ipf-patient-wonders-if-current-symptoms-are-ipf-related-or-not/ Sun, 21 Apr 2019 16:58:53 -0500 IPF patient wonders if current symptoms are IPF related or not

This is my first post. I discovered the Pulmonary News website a few weeks ago while awake during the middle of the night. That led me to the thread on dying from PF where I read postings for over two hours before finally falling sleep.

I am a 75-year-old male who was diagnosed with IPF in late October 2014. The diagnosis was confirmed by a… Read more

]]> 831594946fc01d299c8858fbe7017a36 Merle Sweet became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/11131/ Fri, 12 Apr 2019 13:26:18 -0500 1