Pulmonary Fibrosis News Forums | Stephen Gould | Activity https://pulmonaryfibrosisnews.com/forums/members/steveg/activity/ Activity feed for Stephen Gould. Mon, 27 Apr 2026 14:28:41 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 cd364fe20cef520e3524fdb4058d22a3 Stephen Gould replied to the discussion Low SpO2 levels when sleeping in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/low-spo2-levels-when-sleeping/#post-25391 Thu, 27 Aug 2020 19:21:24 -0500 Reply to Low SpO2 levels when sleeping

I started using O2 connected to my CPAP tubing, and sleep so much better with my sats up at night.  I’m now 24/7 on at least 6 lpm.

]]> beae783a6b602843dc50a235786469f4 Stephen Gould replied to the discussion EGCG Green Tea Extract in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/egcg-green-tea-extract/#post-24119 Thu, 23 Apr 2020 19:16:43 -0500 Reply to EGCG Green Tea Extract

I recently read this, and have an order on the way.

]]> 996c7aedb9ff810ad1b7b9131375541e Stephen Gould replied to the discussion Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/oxygen-questions/#post-24073 Tue, 21 Apr 2020 16:34:14 -0500 Reply to Oxygen Questions

Hi Bill,

Great news, hope you have a good recovery.  Please share anything you can – I have my new patient call mid May to start the process to see if I can get on the list at Shands in Gainesville FL.   I know this thread is about oxygen, and I have been using it as needed on a 2-3 lpm rate.  This works fine when I am standing, walking, or… Read more

]]> 87362e7a0391c662ebad3dc13d0c8dcf Stephen Gould replied to the discussion Lung Transplant Considerations. in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/lung-transplant-considerations/#post-23317 Thu, 05 Mar 2020 16:47:46 -0600 Reply to Lung Transplant Considerations.

Hello all, just re-read all these…. I have had a serious downturn, and my pulmonologist is currently working on a transplant referral.  Based on the SRTR info, I am looking at Shands in Gainesville FL as a first option.  Vanderbilt would be next on the list.   My largest potential issue is the pre/post support, as my GF of 12 years (I am… Read more

]]> 2db9e96737370d5fa7c70cb353f75142 Stephen Gould replied to the discussion Commonly Prescribed Medication For Cholesterol May Benefit IPF Patients in the forum Flash Briefings & Podcasts https://pulmonaryfibrosisnews.com/forums/forums/topic/commonly-prescribed-medication-for-cholesterol-may-benefit-ipf-patients/#post-22833 Tue, 04 Feb 2020 17:24:43 -0600 Reply to Commonly Prescribed Medication For Cholesterol May Benefit IPF Patients

Interestingly,  I stopped taking statins due to the European studies that showed them as a likely cause of PF.  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3297101/   While it may have been primarily for former smokers, statins are contraindicated for that group.  With all of the other known side effects of statins, I now use the Repatha… Read more

]]> aa700599d05d8ebb101ebb3f5a22f585 Stephen Gould replied to the discussion Friend Requests in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/friend-requests/#post-22729 Tue, 28 Jan 2020 16:22:08 -0600 Reply to Friend Requests

Hi All – I never received a friend request from Kate?  Being somewhat new to this group, maybe I am not looking in the correct place?  Where does one see friend requests?

 

Thanks,

Steve

]]> 61788b613c8b2db2f13f1df082bd4dc4 Stephen Gould started the discussion Friend Requests in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/friend-requests/ Sat, 25 Jan 2020 17:42:27 -0600 Friend Requests

Hi All – got a friend request email from this site, however clicking the link to accept it brought me to the site, and nothing more.  I don’t see anywhere to view or accept friend requests, nor to search for the specific member that sent the request.

Can anyone educate me on this?

Thanks,  Steve

]]> d4be4dc8f7f6925977fe8adf797c8acd Stephen Gould replied to the discussion Nattokinase - What dose? in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/nattokinase-what-dose/#post-22585 Tue, 21 Jan 2020 16:02:27 -0600 Reply to Nattokinase - What dose?

Hi all – a friend suggested serrapeptase (one who has no connection to any IPF groups) and after doing some Google searches, it seems to function to break up scar tissue.  I am taking 80,000 units 2x per day, but haven’t seen any recommendations for dosages.  Curious also about what dosage for adding nattokinase to my regimen?

]]> e6e110dff9330df5d71595eaf263ab14 Stephen Gould started the discussion New Member in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/new-member/ Fri, 23 Aug 2019 19:18:06 -0500 New Member

Hello everyone!

Just joined, diagnosed as an incidental finding to a bout of pericarditis back in December 2017.  Started on esbriet spring of 2018, and since then just kind of on a slow glide path.  In reading some of the topics, I am experiencing fatigue, more sleeping, less appetite, but still working.  I’m in the Atlanta area, and look… Read more

]]> c0e4e98872608200d34316fe4981734d Stephen Gould posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/14693/#acomment-14696 Fri, 23 Aug 2019 17:45:28 -0500 Thanks Mark, very glad to find the group! The laser therapy caught my attention, and I just went to the web site to register for the study. Haven’t mailed the reports yet, but will get to that ASAP.

In reply to - Stephen Gould became a registered member ]]> 7f395c80720c735f53cd5e4251050272 Stephen Gould became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/14693/ Fri, 23 Aug 2019 17:38:48 -0500 5