Stephen Gould

I recently read this, and have an order on the way.

Hi Bill,

Great news, hope you have a good recovery.  Please share anything you can – I have my new patient call mid May to start the process to see if I can get on the list at Shands in Gainesville FL.   I know this thread is about oxygen, and I have been using it as needed on a 2-3 lpm rate.  This works fine when I am standing, walking, or in…[Read more]

Hello all, just re-read all these…. I have had a serious downturn, and my pulmonologist is currently working on a transplant referral.  Based on the SRTR info, I am looking at Shands in Gainesville FL as a first option.  Vanderbilt would be next on the list.   My largest potential issue is the pre/post support, as my GF of 12 years (I am wid…[Read more]

Interestingly,  I stopped taking statins due to the European studies that showed them as a likely cause of PF.  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3297101/   While it may have been primarily for former smokers, statins are contraindicated for that group.  With all of the other known side effects of statins, I now use the Repatha inje…[Read more]

Hi All – I never received a friend request from Kate?  Being somewhat new to this group, maybe I am not looking in the correct place?  Where does one see friend requests?

Thanks,

Steve

Hi all – a friend suggested serrapeptase (one who has no connection to any IPF groups) and after doing some Google searches, it seems to function to break up scar tissue.  I am taking 80,000 units 2x per day, but haven’t seen any recommendations for dosages.  Curious also about what dosage for adding nattokinase to my regimen?