Pulmonary Fibrosis News Forums | Maria Donihoo | Activity https://pulmonaryfibrosisnews.com/forums/members/tinadonihoo/activity/ Activity feed for Maria Donihoo. Sat, 25 Apr 2026 19:20:10 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 a0029ad999a8b6d6ccc8b110b4b821bd Maria Donihoo replied to the discussion Stopping OFEV after 33 days in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/stopping-ofev-after-33-days/#post-38365 Tue, 20 May 2025 20:10:04 -0500 Reply to Stopping OFEV after 33 days

I was diagnosed in 2021 with IPF and the doctor did a lung biopsy on me. I don’t recommend getting a biopsy because afterwards my left lung is worse since the surgery! I was put on Ofev 150mg twice daily but I stopped taking it after just two days. I was working as a teacher and after taking the Ofev I became very lightheaded and had to go to…

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]]> 698ef13f6a70d98779e69c85dc8799a8 Maria Donihoo replied to the discussion 51 days of ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/51-days-of-ofev/#post-37484 Thu, 10 Oct 2024 20:09:53 -0500 Reply to 51 days of ofev

Hello!

I will be praying for you and your family!

I was diagnosed with IPF in 2021 and I had a biopsy done two years ago. My doctor put me on OFEV and my body couldn’t tolerate it, so I told the doctor I wasn’t going to take it anymore. I took the OFEV for only one week. I was overweight so last year (August) I started a Carnivore diet and lost…

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]]> 5eb78ab9d61e64658e807cd21062cb98 Maria Donihoo replied to the discussion Drug Induced IPF (unknown cause) Meds? in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/drug-induced-ipf-unknown-cause-meds/#post-37059 Sun, 19 May 2024 21:13:48 -0500 Reply to Drug Induced IPF (unknown cause) Meds?

Hello!

I was diagnosed with IPF and I was wondering how many people who have this disease were taking Statins? Statins are dangerous. I have been doing a lot of research on statins and they cause so many other problems. I wonder if this drug is the cause of my IPF!

Respectfully,

Maria Donihoo

]]> 71667752fcb618566ad9465287b35cf8 Maria Donihoo replied to the discussion How quickly can pulmonary fibrosis progress? in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/how-quickly-can-pulmonary-fibrosis-progress/page/3/#post-37044 Wed, 15 May 2024 02:53:11 -0500 Reply to How quickly can pulmonary fibrosis progress?

Hello Jayme!

I was diagnosed in 2022 with IPF and I tried taking the OFEV that the doctor prescribed for me – it was a horrible experience! My blood pressure got so high that I almost passed out! I decided not to take it anymore! I started doing research on cures for diseases and came across the carnivore diet! Many people have reversed…

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]]> 851b0e689e51aeeb29b0d876a8810a80 Maria Donihoo replied to the discussion Hard time Breathing in the mornings. in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/hard-time-breathing-in-the-mornings/page/2/#post-36725 Tue, 05 Mar 2024 23:42:05 -0600 Reply to Hard time Breathing in the mornings.

Hello everyone!

I was diagnosed with IPF in 2021 and I tried taking OFEV but it did no agree with me so, I am not taking anything right now! I feel like I’m getting worse because I have a hard time breathing with just a little bit of walking or working around the house! I started doing research about getting healthy and found the book “Stay…

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]]> 85cc7b8d737d18a46685e433d1f60358 Maria Donihoo replied to the discussion Low oxygen because I don't like what it does for my stamina. in the forum Healthcare Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/low-oxygen-because-i-dont-like-what-it-does-for-my-stamina/#post-35959 Tue, 19 Sep 2023 19:32:41 -0500 Reply to Low oxygen because I don't like what it does for my stamina.

Hello Harry!

I can’t give you advice but I will keep you in my prayers! I’m in my third year of IPF and I stopped taking Ofev because it made my blood pressure skyrocket and I got very dizzy! I didn’t like feeling that way. I’m starting to feel better little by little and it’s because I changed my diet- zero carbs! I felt horrible for two…

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]]> 69d7f7d91bd874d9aa42f9b8809bb664 Maria Donihoo replied to the discussion Introducing Our Newest Forum: Hobbies & Projects. in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/check-new-forum/#post-35957 Tue, 19 Sep 2023 19:16:41 -0500 Reply to Introducing Our Newest Forum: Hobbies & Projects.

That’s awesome! I would love to see those!

]]> 5b5d9efe52f90478c5970e921282c1c9 Maria Donihoo replied to the discussion Introducing Our Newest Forum: Hobbies & Projects. in the forum Hobbies & Projects https://pulmonaryfibrosisnews.com/forums/forums/topic/check-new-forum/#post-35956 Tue, 19 Sep 2023 19:15:43 -0500 Reply to Introducing Our Newest Forum: Hobbies & Projects.

I find that doing mixed media helps me relax and I forget about everything (including eating and time) while doing so!

I love crafting!

Blessings to all!

Tina Donihoo

]]> e6b69ac943aa87f90eae81c7f435d6a1 Maria Donihoo replied to the discussion Lung Biopsy in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/lung-biopsy/#post-34689 Tue, 21 Mar 2023 22:22:33 -0500 Reply to Lung Biopsy

Hi Deb!

I had an open lung biopsy (December 14, 2022) because my doctor said he had to know how to treat my IPF. I wish I would have gotten a second opinion! I am still in pain from the surgery and my breathing seems to be worse! It doesn’t matter what kind of IPF you have because there’s only two different medications to treat it and they… Read more

]]> 3db03fe8ac5101a38bb9e78c454576ce Maria Donihoo replied to the discussion Questions about Ofev in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/questions-about-ofev/#post-34634 Wed, 15 Mar 2023 12:05:46 -0500 Reply to Questions about Ofev

I forgot to mention I am on the 150mg. 2 times per day! I also normally have high blood pressure but it has been under control!

 

]]> 37d1356f7bb7db81ec885cb7bdb7192a Maria Donihoo replied to the discussion Questions about Ofev in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/questions-about-ofev/#post-34633 Wed, 15 Mar 2023 12:01:17 -0500 Reply to Questions about Ofev

Thank yo so much for your reply! This is truly a wonderful site with people who care about each other and share their experiences of what they have gone through. I will eventually try the Ofev again after I retire in May. I’m just dreading the side effects I had ( night blood pressure and dizziness).  My pulmonologist actually asked the nurse… Read more

]]> d568fa859c940430c2c74324aee38760 Maria Donihoo started the discussion Questions about Ofev in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/questions-about-ofev/ Tue, 14 Mar 2023 00:53:58 -0500 Questions about Ofev

I started Ofev in January 2023, after having an open lung biopsy, and I only took the medicine for 3 days when I started getting really high blood pressure and I was really dizzy to the point of almost vomiting. I called my doctor and he said to stop it and see what happens. Well I haven’t taken it since then and it is now March 2023. My… Read more

]]> 33990e078b770975c0bc01f68fbdd0da Maria Donihoo became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/37573/ Tue, 21 Feb 2023 14:07:21 -0600 0