I started on Cellcept/Mycophenolate almost 3- years ago after 2- years of Ofev. I would say that my Rheumatologist recommended this medication because of my CK”s going through the roof. I might also add that I already have Ryanoids which is an Immune disease which also complicates things. While I have enjoyed less side effect and remained…

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Hi Charlene,

I don’t like the gloomy weather either, but I try to offset the effects by going to the Gym at least twice a week. It not only helps me get the walking in I need but also gives me the interaction with other people. We sometimes get into social isolation if we don’t have a schedule or a plan which can be difficult on those bad days,…

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Hi Maizeblue,

We had a cockatiel for 14 years not sure what caused my IPF. No indoor pets after that, sure loved that bird he has been gone for a long time. Just mentioned as a reverence. Best of luck God Bless.

Hi Carol,

My name is William and I also have Raynolds and IPF. I am not on oxygen except when working in the yard or exertion. I also wear CPAP at night, I was on Ofev for about 2 years when my doctors suggested that I try Cell Cept also for the Immune system problem. I decided to come off the Ofev although my Lung surgeon did not think it…

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I was on OFEV for two years but have now switched to Cell Cept because of high liver enzymes and Auto-Immune disease. The Cell -Cept will be used if my condition gets to transplant status for P.F. anyway. I do have Gerd spells usually after meals. (Diet is critical) but unusually not after bedtime. My status is good right now and am… Read more

First let me say everyone has different situations going on. I did ask my doctor about cutting down doses and he told me there weren’t enough studies to show that as an alternative. Needless to say, the Ofev or something else shot my liver enzymes up and they put me on Cell Cept instead. I will also note that the Covid Booster triggered… Read more

Same as Bill, Told I had IPF 3 years ago been on Ofev for 2.5 years started at 150 but couldn’t tolerate and was switched to 100. Sought out second opinion with the help of my Lung Doctor to a transplant hospital, ran more test and they told me they weren’t sure it was IPF but might be autoimmune disease. I also showed ground glass, but have… Read more