I am getting ready to begin antifibrotic meds. I have researched PERFENIDONE which is cheaper  thru normal channels?. I deal with canadapharmacyonline.com. They list generic perfenidone made in India and available with a valid US prescription, but shipped from India.Call them for info. I have used meds from this company for 20+ years… Read more

FYI- a prescription is required for anf reputable Canadian pharmacy. A prescription will not save your meds at the U S customs. They confiscate all meds when they do a random spot check.. You can appeal with facts but it does not help. I tried  it. My Canadian pharmacy sent another batch to me at no extra cost when I showed them the FDA seizure form.

When my FEV and DCLO dropped I panicked but then I had a course of pulmonary rehab and my physical and mental status both improved. I also got checked for sleep apnea and now sleep and awaken better. I felt better sharing and listening to others in the support groups(I am in four!) After my scare I also sought meds from my family doc for… Read more

I have had symptoms, and xray changes of IPF since 2016 but official dx made 2021 by local pulmonologist. I then saw Superstar professor at regional center who thinks ILD. I’m 87.5 years and coping decently with only nighttime 2 liters oxygen. I have only minimal restriction with stairs,hills, and exertion(no oxygen). I have a contributing… Read more

FYI-Unclear if you mean that your DLCO dropped from 40% to 35% or if a total drop of that amount occurred.I had DLCO of 55% nine months ago with a repeat 2 months ago of 68% !
Lab error? I suspect all tests are variable but the trend and our symptoms and pulmonary function tests must be considered too. A Second opinion pulmonologist suggested… Read more

OOPS !! My typo-lowest dose made in India but sold by above pharmacy is 200 MG. not my 100 mg. listed in the second sentence above so the math is correct.

FYI- I am not on anti-fibrotic meds(yet) and I have PF one year. I have been buying meds from canadapharmacyonline.com for about 20 years. Only one shipment of my meds confiscated at the border by the FDA thugs but the pharmacy sent another shipment no charge.

They offer the generic Esbriet 90 tablets 200 mg. for $158 or 4 tabs would cost… Read more

I have Interstitial Lung Disease-one of many variants of Pulmonary Fibrosis.My Flares are intense bronchitis/pneumonia, productive cough, fatigue, but I usually do not have significant muscle pain,fever,or neck pain. I have an old arthritic neck with aches but never with a flare.My flare lasts 3-4 weeks and the most effective treatment is… Read more