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Bill Kelly replied to the topic Oxygen concentrators and travel in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months, 2 weeks ago
Kate,
I have flown round-trip transatlantic 3 times and coast to coast in the US twice. There is a company at oxygentogo.com that is very helpful on air travel. Some airlines sub contract permission to them. Look at their website. They show all FAA allowed POCs.
The FAA requires you to carry 150% of the batteries needed for a one-way trip. If…[Read more] -
Bill Kelly replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year ago
Yes, I hadn’t thought of that. Cutting torches can cause fires even without oxygen so an O rich atmosphere would do the trick.
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Bill Kelly replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year ago
The biggest danger in a car is if you have gaseous oxygen in metal cylinders and have an accident. If the cylinder is not secured it could be thrown about the car as a projectile (like any steel cylinder). Even if it didn’t hit anybody, the closure valve could be knocked off it and the escaping gas could throw it all over the car. Think ab…[Read more]
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Bill Kelly replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year ago
Wendy,
You should wipe the filler on the reservoir and the flask with a dry cloth before you fill it. Your “flask” must have a name on it. Look it up on the net. If you need 4L/min then LOX is your best solution. See if you can do with less by turning it to 3L and checking your oximeter. Etc.,etc.
I have found that with ipf, God helps thos…[Read more]
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Bill Kelly replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 1 month ago
Amazingly, Medicare can be helpful. Give them a try. Have the details of your “supplier” ready. They once telephoned a reluctant supplier for me with me on the line.
Bill
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Bill Kelly replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 1 month ago
Some – not all- O suppliers give you what they think they can get away with. You can find every Medicare supplier in your area by going to the Medicare site. Then call them and ask them if they supply what you are looking for. I suspect the base problem is Medicare not allowing an economic fee. It’s worse since they went to competitive…[Read more]
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Bill Kelly replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 2 months ago
Bob
I assume you mean continuous flow when you say you need 3L/Min for exercise? With POCs it is a case of buyer beware. Many of the salesmen will tell you anything to make a sale. There is an enormous profit in these and in the batteries. The 6 settings on the G5 don’t mean a thing unless you know what they refer to. Will a G5 even run in…[Read more] -
Bill Kelly replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 2 months ago
Hey Marianne
Did they tell you how long you have to say you are satisfied or not? It used to be 3 months. Then it’s difficult to change. Usually it’s the POC that’s the problem. Take your O2 level while you are active and make sure you are getting enough. You can buy an oximeter on Amazon and check it for accuracy against your doctor’s,Good…[Read more]
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Bill Kelly replied to the topic Supplemental Oxygen Questions in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 2 months ago
Hey Wendy,
Which “flask” are you using? Have you tried topping up your portable before it’s empty. I’ve been doing that for years with a Marathon 850 but I don’t use as much O2 as you.Best wishes,
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Bill Kelly replied to the topic Covid vaccine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 2 months ago
Pete
You never said a truer word. The health District here, had an appointment booking web site that a 13 year old kid would be ashamed of building. I have never seen anything as bad. This was for use by the section of the public least able to navigate it – 75 year olds.
All they had to do was go to the existing websites of the commercial…[Read more] -
Bill Kelly replied to the topic Covid vaccine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 2 months ago
Susan
that is a decision that everyone must make for themselves. I know more than a dozen people who have had the Pfizer vaccine (all over 70) – though millions have had it in the US. I have never heard personally of a bad reaction. My wife and I had the Moderna and after the 2nd shot, we decided that it could well have been saline or distilled…[Read more] -
Bill Kelly replied to the topic Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 3 months ago
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Bill Kelly replied to the topic Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 3 months ago
I urge you to move heaven and earth to get liquid oxygen (LOX). Ideally you should have a stationary concentrator for sleeping and around the house if you need it. Use LOX for activities. I get 1 delivery a month. The container looks a little like a Dalek. I then fill a portable container (In my case Helios 850 Marathon) but there are others.…[Read more]
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Bill Kelly replied to the topic Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 3 months ago
Yes John, this happens when your hands are cold. Rubbing your hands together fast and hard will usually warm them up enough to get a reading,
Bill
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Bill Kelly replied to the topic Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 3 months ago
Bob,
How much O are you using. The “bottles” that deliver the O differ greatly. Helios 850 and 300 need a special canula that senses your inhalation through one nostril and delivers the O through the other. This is a problem if you have a blockage in either nostril eg a deviated septum. There is another special canula that works in this…[Read more] -
Bill Kelly replied to the topic Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 3 months ago
Bobbie
They all have a filter but it’s very course. It would stop a fly but not a virus. An oxygen cylinder, either gas or liquid is much better. On a plane it’s Hobson’s choice, you can only use a POC. I read that the filters on an airliner will filter out viruses but the airports remain dangerous.Bill
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Bill Kelly replied to the topic Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 3 months ago
Susan
I assure you that money is not my problem with ipf. -
Bill Kelly replied to the topic Oxygen in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 3 months ago
I thought you all might be interested in this. I just signed up for my next 5 years oxygen supply and I noted the 1st Medicare payment to the supplier for Liquid oxygen. How about $74.18/month? Of which I’m responsible for 20%, though my gap insurance pays it. Do you wonder why DME suppliers are loath to supply it. A plumber charges $60 just…[Read more]
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Bill Kelly replied to the topic Covid vaccine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 4 months ago
I do not look at prioritization as a sociological problem but a scientific one. In the US and most of the world, 80% of all deaths are people over 65. If you want to get the death rate down you vaccinate old people, as Florida and Texas are doing. This also cuts the hospitalization rate hugely. The existing patients will get better treatment and…[Read more]
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Bill Kelly replied to the topic Covid vaccine in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 4 months ago
NV is almost unbelievable: Below is the actual plan available on the net but not publicized in any way. To save you the trouble the earliest anyone here will be vaccinated is 30th group, after 12 in tier 1, 15 in Tier 2 and released prisoners and homeless in Tier 3.
Disgusting is the word that comes to mind. It is entirely political. They…[Read more]
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