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Peter became a registered member 4 days, 15 hours ago
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Debra Lowder replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 days, 17 hours ago
BRAVO. Well said, Darlene. I couldn’t have expressed it better myself.
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John Weitner replied to the topic Stem cell treatment experiences in the forum Living with Pulmonary Fibrosis: 50+ 4 days, 20 hours ago
Carlo,
I did post my experience a couple of months ago..
this is what I posted:
Due to this thread I decided to have stem cell therapy done – which I did last December at a clinic in Colombia.
I was told that it would take 4 to 6 months to see any results. They stated that the improvement would be less inflammation in my lungs. They never m…[Read more]
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Steve Dragoo replied to the topic Toolkit for the Newly Diagnosed in the forum Diagnosis Information and General Questions 5 days, 6 hours ago
1.) I had to let my doctor know about the PF News and Forums, hopefully, she is referring patients to you because hands down PF News/Forums are the best sources for encouragement, enlightenment, cutting edge, relatable stories, shared similarities, recipes, fresh ideas, and real-time insights on medical trials with promise for the future
2.)…[Read more]
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Harletta Carathel replied to the topic Stem cell treatment experiences in the forum Living with Pulmonary Fibrosis: 50+ 5 days, 9 hours ago
Curt, Do you think the stem cell therapy would help a person with ILD that doesnt have an upcoming lung transplant? In what way to you think it helped you?
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Sybiĺ Whimster replied to the topic Sam's Tips for Traveling with O2 in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 days, 10 hours ago
Ijust bought a folding three wheeled walking aid for just that purpose. It has a bag attached to the front big enough to carry a 5litre tank and also serves as something to hang on to for unsteady walking. It is available in UK from a company called careco.com but lm sure will be available else where. I actually bought mine from Amazon for £36.
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Caryl Dearing became a registered member 5 days, 10 hours ago
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Camilla replied to the topic Rolling cart in the forum Diagnosis Information and General Questions 5 days, 11 hours ago
I use the rolling tank cart for the smaller oxygen tank. I found a metal grid basket at Joanne’s Fabrics that is just the right size for my Inogen 5 POC. (About $15; found near the silk flower section.) I removed the top telescoping part of the cart handle, threaded the basket over the bottom part of the cart handle, and reattached the handle. T…[Read more]
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Josanne Hatley became a registered member 5 days, 13 hours ago
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Teresa Lim replied to the topic Rolling cart in the forum Diagnosis Information and General Questions 5 days, 13 hours ago
I recently bought Enogen G5 POC. Enogen makes a pulling cart that fits perfectly and easy to handle. Cost about $150
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Teresa Lim became a registered member 5 days, 13 hours ago
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Judy Fraser replied to the topic Stem cell treatment experiences in the forum Living with Pulmonary Fibrosis: 50+ 5 days, 13 hours ago
Following
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Carlo De Pellegrin replied to the topic Stem cell treatment experiences in the forum Living with Pulmonary Fibrosis: 50+ 5 days, 15 hours ago
John, might you share your experience with all on this site? i certainly would be interested as I’m sure many more would.
thank you so much….
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Marcy Hill became a registered member 5 days, 19 hours ago
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Jacqui replied to the topic Rolling cart in the forum Diagnosis Information and General Questions 6 days ago
Wow, these are all great ideas. I really appreciate each of you taking the time to share what’s worked for you.
If I present enough suggestions to my mom, I am optimistic she can find something she likes.
My very best to you all.
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Christie Patient started the topic Toolkit for the Newly Diagnosed in the forum Diagnosis Information and General Questions 6 days, 2 hours ago
Calling all veteran PF-ers! Let’s work together to build a resource for the newly diagnosed members of our forum community. Please answer any/all of the questions below to help create a one-stop shop for people who are just starting on their PF journey. Thanks for your help!
1. What are some must-have items that help you manage life with…[Read more]
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Sharon MacMillan replied to the topic Sleeping on a slope in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 days, 15 hours ago
Thanks for sharing your experience. I am just now being prepared to be placed on a transplant list. Would love to hear that experience if you want to share.
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Sharon MacMillan replied to the topic Sleeping on a slope in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 days, 15 hours ago
Good advice. Eating after 7 is not worth it.
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Jim Couch became a registered member 6 days, 19 hours ago
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Betty J. Rhodes became a registered member 6 days, 19 hours ago
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Welcome to the PF forums Peter, we’re glad you found us.