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BRAVO. Well said, Darlene. I couldn’t have expressed it better myself.

Carlo,

I did post my experience a couple of months ago..

this is what I posted:

Due to this thread I decided to have stem cell therapy done – which I did last December at a clinic in Colombia.

I was told that it would take 4 to 6 months to see any results. They stated that the improvement would be less inflammation in my lungs. They never m…[Read more]

1.) I had to let my doctor know about the PF News and Forums, hopefully, she is referring patients to you because hands down PF News/Forums are the best sources for encouragement, enlightenment, cutting edge, relatable stories, shared similarities, recipes, fresh ideas, and real-time insights on medical trials with promise for the future

2.)…[Read more]

Curt, Do you think the stem cell therapy would help a person with ILD that doesnt have an upcoming lung transplant? In what way to you think it helped you?

Ijust bought a folding three wheeled walking aid for just that purpose. It has a bag attached to the front big enough to carry a 5litre tank and also serves as something to hang on to for unsteady walking. It is available in UK from a company called careco.com but lm sure will be available else where. I actually bought mine from Amazon for £36.

I use the rolling tank cart for the smaller oxygen tank. I found a metal grid basket at Joanne’s Fabrics that is just the right size for my Inogen 5 POC. (About $15; found near the silk flower section.) I removed the top telescoping part of the cart handle, threaded the basket over the bottom part of the cart handle, and reattached the handle. T…[Read more]

I recently bought Enogen G5 POC. Enogen makes a pulling cart that fits perfectly and easy to handle. Cost about $150

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John, might you share your experience with all on this site? i certainly would be interested as I’m sure many more would.

thank you so much….

Wow, these are all great ideas. I really appreciate each of you taking the time to share what’s worked for you.

If I present enough suggestions to my mom, I am optimistic she can find something she likes.

My very best to you all.

Thanks for sharing your experience. I am just now being prepared to be placed on a transplant list. Would love to hear that experience if you want to share.

Good advice. Eating after 7 is not worth it.