• Profile photo of Joan ciccarelli

      Joan ciccarelli posted an update

      4 years ago

      @nimrod hi i am new to this i have had ipf since 2006 i am on oxygen 4 when i walk and i have liquid oxygen and straight oxygen
      This forum is very interesting wish i had it when i first started with iof

      3 Comments
      • Profile photo of Karen Boettin.
        Karen Boettin.

        I’ve had it for about 20 years, it started with Raynauds .I’m on 2 liters .i.e. Taking ofev now to slow down the fibrosis in my lungs.

        4 years ago
        • Profile photo of Joan ciccarelli
          Joan ciccarelli

          Hi karen
          We are lucky to still be alive as this disease takes some people real early my doctor is really not up to the lazzer i will be talking g to him on monday no office visits with this virus but he was the one who realized what i had one doctor tried puffers and said i do not know what this is goodbye . I was shocked but luckily i found dr perle hope you have a great doctor

          4 years ago

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