New treatments

  • New treatments

    Posted by Community Member on February 18, 2020 at 8:00 am

    Are there any know studies going on for the cure of IPF? If so where can I investigate?

    Community Member replied 3 Members · 6 Replies
  • 6 Replies
  • Community Member

    Member

    Hello Joe, here is a link that you can use to find a clinical trial. https://trials.pulmonaryfibrosis.org/

    Here is another link I think you will find valuable as well. https://www.pulmonaryfibrosis.org/life-with-pf/clinical-trials

    mark

  • Community Member

    Member

    Hi Joe & Mark

    While this scientific paper doesn’t deal with medical treatment of IPF it does give a clear overview of available  antifibrotic drugs available now and their side effects.

    https://journals.sagepub.com/doi/full/10.1177/1060028019862497

     

    cheers Mal

     

  • Community Member

    Member

    Hello Mal, thank you for sharing the article. Very much appreciated! Mark

  • Community Member

    Member

    Thanks Mark. Looking for that study that will come up with a cure. Just hoping and praying

  • Community Member

    Member

    Hello Joe, I am right there with you Joe. I hope it happens sooner rather than later. I interviewed a pulmonary disease doctor/researcher. Here is the link. He offers hope.
    https://pulmonaryfibrosisnews.com/forums/forums/topic/an-interview-with-a-pulmonologist/

    An Interview With a Pulmonologist

  • Community Member

    Member

    The federal government website, clinicaltrials.gov an, a search for idiopathic pulmonary fibrosis.  The site list current and past clinical trial phases I, II and III.  Additional search terms or sorting (i.e., recruiting) can focus the list to your interests.  I am on a Phase III clinical trial of pamrevlumab, a connective tissue growth factor inhibitor (a human monoclonal antibody) from Fibrogen.  Good luck with your search!  BERT

  • Community Member

    Member

    Hello Bert, thank you for sharing. I think I speak for all of our members wishing you good luck and this clinical trial is successful. Please keep us updated. Best wishes, mark.

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