Members directory

  • Profile picture of Jennifer
    Active 3 days, 2 hours ago
    - "Has anyone tried Tyvaso and if so what has your experience been like?"View
  • Profile picture of Daniel Brown
    Active 3 days, 9 hours ago
  • Profile picture of Christie
    Active 3 days, 9 hours ago
  • Profile picture of Judy Fraser
    Active 3 days, 10 hours ago
  • Profile picture of Steve Dragoo
    Active 3 days, 12 hours ago
    - "@kristina Hi Kristina – Sorry for the long delay but I could not get into the forums using FB. I am fine, my wife nursed me through a bad time last year and of course, this lovely disease is taking its […]"View
  • Profile picture of Stuart
    Active 3 days, 12 hours ago
  • Profile picture of Karen Rachal
    Active 3 days, 12 hours ago
  • Profile picture of Mary Tebbutt
    Active 3 days, 13 hours ago
    - "Just been reading about IPF sufferers who have experienced strange reactions to scents after diagnosis. As my appetite decreased over a period of time, my sensitivity to smell (mainly bad ones …. Kitchen sink, t […]"View
  • Profile picture of Tim Ortiz
    Active 3 days, 13 hours ago
  • Profile picture of Allan Byron
    Active 3 days, 13 hours ago
    - "Does anybody in the group had any experience or feed back on Wei institute mode of treatment? please share any experiences, etc you have, because i gave them a call for info, and the Soup ,A, B, etc will cost […]"View
  • Profile picture of Penny Rylee
    Active 3 days, 14 hours ago
  • Profile picture of Lorraine Tracey
    Active 3 days, 14 hours ago
  • Profile picture of Judith Parker
    Active 3 days, 15 hours ago
  • Profile picture of Elizabeth Ostrycharz
    Active 3 days, 15 hours ago
    - "@mark-koziol Thank you Mark, look forward to sharing and learning………….."View
  • Profile picture of Jofac O'Handlin
    Active 3 days, 16 hours ago
    - "Hi Charlene, and group members. I am with the NHS in the UK and presently on OFEV 100mg x2 per day. Reduced from the usual 150’s due to bowel troubles. At an annual test ( actually 15 months) I had lost 10% FVC, […]"View
  • Profile picture of Shafi
    Active 3 days, 16 hours ago
  • Profile picture of Dicky Griffin
    Active 3 days, 17 hours ago
    - "New to the PFN forum … not sure I’ll have much to offer, but I so appreciate reading everyone’s comment and thank everyone for sharing their thoughts."View
  • Profile picture of Elle
    Active 3 days, 17 hours ago
  • Profile picture of Brenda
    Active 3 days, 17 hours ago
  • Profile picture of Gloria M Wheeler
    Active 3 days, 17 hours ago
  • Profile picture of Phyllis Della-Latta
    Active 3 days, 17 hours ago
  • Profile picture of Mack
    Active 3 days, 17 hours ago
    - "My doctor reduced my ofev from 150 twice a day to 100 twice a day because of severe diarrhea. Does the 100 work as well as the 150 ? Thanks"View
  • Profile picture of Bruce Hawn
    Active 3 days, 17 hours ago
  • Profile picture of Mary Geissler
    Active 3 days, 18 hours ago

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