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Adelaide Campbell replied to the topic Winter Fitness & PF in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 3 weeks ago
Following closely:
I’m disgusted with myself, the overwhelming weakness, shakes, aches, sweats, fatigue.
Starting today, I’m going to stop this laying around, feeling sorry for myself.
Youtube has many excellent gentle yin yoga sessions, by Kassandra, as long or as short as I wish. Also morning and evening ones.
YIN yoga is simply lying on th…[Read more] -
Adelaide Campbell replied to the topic Rolling cart in the forum Diagnosis Information and General Questions 10 months ago
Yes, I have one, I got it on Amazon. It’s a neat little thing, red. I push it or pull it. When shopping, I can lift the whole thing and put it in my shopping cart.
I’m female, and old. I find the weight of the POC too much for on the shoulder, ok in a back pack but hard to get at to turn off and on. But the trolley makes it all so much eas…[Read more]
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Adelaide Campbell replied to the topic COVID ON TOP OF IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year ago
I’m 78, diagnosed with ILD PF, and have just got over Covid. What a nasty ugly little virus that is! So five days mostly spent in bed, and five days getting over the fatigue that lingers. I’m on 2l for exertion but I haven’t needed oxygen much for a while now. And I didn’t use much while I was sick. I’m back out in the garden, enjoying the…[Read more]
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Adelaide Campbell replied to the topic Traveling with Pulmonary Fibrosis in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 1 month ago
I can’t add anything to this thread, except:
I’ve just returned from the UK, I live in Ontario, canada.
I took the OxyGoFit POC, with a back up battery.
Neither there nor back did I need it, though I used it a bit for boarding, and disembarking.No change in my O2 levels at any time.
But in on 2l for exertion, not needed at res…[Read more]
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Adelaide Campbell replied to the topic Newly diagnosed UIP OFEV advice in the forum Diagnosis Information and General Questions 1 year, 2 months ago
I’d stall on the meds. That’s what I’m doing. I should have started on steroids but I’ve a trip booked to UK tomorrow, for two weeks, and I definitely don’t want any potential side effects to spoil my time there.
I will start when I get back.I might not take that chance if my disease ( ILD PF) was more advanced. But I’m on oxygen 2l upon…[Read more]
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Adelaide Campbell replied to the topic Household Chores & IPF! in the forum Diagnosis Information and General Questions 1 year, 3 months ago
I’m lucky ….. I have a cleaner, who is also a friend. (I’m old so I can afford her.)
But I try to do some myself ….. changing sheets! What a pain that is, leaving me breathless and exhausted. Then shaking hands for a while after I recover.WHEN do you turn to your oxygen? Ok, if I use it, I feel much better.
BUT … if I sit for a while,…[Read more]
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Adelaide Campbell replied to the topic Wrestling with the End Stage of Pulmonary Fibrosis in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 3 months ago
I’m so with you, Kim. I want to make plans. I’m a person who needs to make plans. Otherwise I worry worry worry. But I can’t get a straight answer.
I know I’ve only recently been diagnosed, but that doesn’t mean that’s when the PF started! Not at all, I remember symptoms (SOB, which I dismissed, 2-3 years ago). This year it’s got worse ….…[Read more]
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Adelaide Campbell became a registered member 1 year, 4 months ago
Welcome to the PF forums Adelaide, thanks for joining us!