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Adelaide Campbell

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@addie

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    Adelaide Campbell replied to the topic COVID ON TOP OF IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 3 weeks ago

    I’m 78, diagnosed with ILD PF, and have just got over Covid.  What a nasty ugly little virus that is!  So five days mostly spent in bed, and five days getting over the fatigue that lingers.  I’m on 2l for exertion but I haven’t needed oxygen much for a while now. And I didn’t use much while I was sick.  I’m back out in the garden, enjoying the…[Read more]

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    Adelaide Campbell replied to the topic Traveling with Pulmonary Fibrosis in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 3 weeks ago

    I can’t add anything to this thread, except:

    I’ve just returned from the UK, I live in Ontario, canada.

    I took the OxyGoFit POC, with a back up battery.
    Neither there nor back did I need it, though I used it a bit for boarding, and disembarking.

    No change in my O2 levels at any time.

    But in on 2l for exertion, not needed at res…[Read more]

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    Adelaide Campbell replied to the topic Newly diagnosed UIP OFEV advice in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 1 week ago

    I’d stall on the meds.  That’s what I’m doing.  I should have started on steroids but I’ve a trip booked to UK tomorrow, for two weeks, and I definitely don’t want any potential side effects to spoil my time there.
    I will start when I get back.

    I might not take that chance if my disease ( ILD PF) was more advanced.  But I’m on oxygen 2l upon…[Read more]

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    Adelaide Campbell replied to the topic Household Chores & IPF! in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months, 1 week ago

    I’m lucky ….. I have a cleaner, who is also a friend.  (I’m old so I can afford her.)
    But I try to do some myself ….. changing sheets!  What a pain that is, leaving me breathless and exhausted.  Then shaking hands for a while after I recover.

    WHEN do you turn to your oxygen?  Ok, if I use it, I feel much better.

    BUT … if I sit for a while,…[Read more]

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    Adelaide Campbell replied to the topic Wrestling with the End Stage of Pulmonary Fibrosis in the forum Living with Pulmonary Fibrosis: 50+ 4 months, 1 week ago

    I’m so with you, Kim.  I want to make plans.  I’m a person who needs to make plans.  Otherwise I worry worry worry.  But I can’t get a straight answer.

    I know I’ve only recently been diagnosed, but that doesn’t mean that’s when the PF started!  Not at all, I remember symptoms (SOB, which I dismissed, 2-3 years ago).  This year it’s got worse ….…[Read more]

  • Profile picture of Adelaide Campbell

    Adelaide Campbell became a registered member 4 months, 4 weeks ago

    • Profile picture of Christie Patient
      Christie Patient replied 4 months, 3 weeks ago

      Welcome to the PF forums Adelaide, thanks for joining us!

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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