Adelaide Campbell

I’m 78, diagnosed with ILD PF, and have just got over Covid.  What a nasty ugly little virus that is!  So five days mostly spent in bed, and five days getting over the fatigue that lingers.  I’m on 2l for exertion but I haven’t needed oxygen much for a while now. And I didn’t use much while I was sick.  I’m back out in the garden, enjoying the…[Read more]

I can’t add anything to this thread, except:

I’ve just returned from the UK, I live in Ontario, canada.

I took the OxyGoFit POC, with a back up battery.
Neither there nor back did I need it, though I used it a bit for boarding, and disembarking.

No change in my O2 levels at any time.

But in on 2l for exertion, not needed at res…[Read more]

I’d stall on the meds.  That’s what I’m doing.  I should have started on steroids but I’ve a trip booked to UK tomorrow, for two weeks, and I definitely don’t want any potential side effects to spoil my time there.
I will start when I get back.

I might not take that chance if my disease ( ILD PF) was more advanced.  But I’m on oxygen 2l upon…[Read more]

I’m lucky ….. I have a cleaner, who is also a friend.  (I’m old so I can afford her.)
But I try to do some myself ….. changing sheets!  What a pain that is, leaving me breathless and exhausted.  Then shaking hands for a while after I recover.

WHEN do you turn to your oxygen?  Ok, if I use it, I feel much better.

BUT … if I sit for a while,…[Read more]

I’m so with you, Kim.  I want to make plans.  I’m a person who needs to make plans.  Otherwise I worry worry worry.  But I can’t get a straight answer.

I know I’ve only recently been diagnosed, but that doesn’t mean that’s when the PF started!  Not at all, I remember symptoms (SOB, which I dismissed, 2-3 years ago).  This year it’s got worse ….…[Read more]