-
Adelaide Campbell replied to the topic COVID ON TOP OF IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 month, 3 weeks ago
I’m 78, diagnosed with ILD PF, and have just got over Covid. What a nasty ugly little virus that is! So five days mostly spent in bed, and five days getting over the fatigue that lingers. I’m on 2l for exertion but I haven’t needed oxygen much for a while now. And I didn’t use much while I was sick. I’m back out in the garden, enjoying the…[Read more]
-
Adelaide Campbell replied to the topic Traveling with Pulmonary Fibrosis in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 3 weeks ago
I can’t add anything to this thread, except:
I’ve just returned from the UK, I live in Ontario, canada.
I took the OxyGoFit POC, with a back up battery.
Neither there nor back did I need it, though I used it a bit for boarding, and disembarking.No change in my O2 levels at any time.
But in on 2l for exertion, not needed at res…[Read more]
-
Adelaide Campbell replied to the topic Newly diagnosed UIP OFEV advice in the forum Diagnosis Information and General Questions 3 months, 1 week ago
I’d stall on the meds. That’s what I’m doing. I should have started on steroids but I’ve a trip booked to UK tomorrow, for two weeks, and I definitely don’t want any potential side effects to spoil my time there.
I will start when I get back.I might not take that chance if my disease ( ILD PF) was more advanced. But I’m on oxygen 2l upon…[Read more]
-
Adelaide Campbell replied to the topic Household Chores & IPF! in the forum Diagnosis Information and General Questions 4 months, 1 week ago
I’m lucky ….. I have a cleaner, who is also a friend. (I’m old so I can afford her.)
But I try to do some myself ….. changing sheets! What a pain that is, leaving me breathless and exhausted. Then shaking hands for a while after I recover.WHEN do you turn to your oxygen? Ok, if I use it, I feel much better.
BUT … if I sit for a while,…[Read more]
-
Adelaide Campbell replied to the topic Wrestling with the End Stage of Pulmonary Fibrosis in the forum Living with Pulmonary Fibrosis: 50+ 4 months, 1 week ago
I’m so with you, Kim. I want to make plans. I’m a person who needs to make plans. Otherwise I worry worry worry. But I can’t get a straight answer.
I know I’ve only recently been diagnosed, but that doesn’t mean that’s when the PF started! Not at all, I remember symptoms (SOB, which I dismissed, 2-3 years ago). This year it’s got worse ….…[Read more]
-
Adelaide Campbell became a registered member 4 months, 4 weeks ago
Welcome to the PF forums Adelaide, thanks for joining us!