Amber

Hi..perhaps because its still idiopatic..so you can get a chance to understand why you have it? So if lucky you can stop the cause..as long you dont know the cause there wil not be a change…and fibrosis keeps going..( thats what i understoud about my own case)

I just started amonth ago…hoping for good results

Hi there ,

I am now on prednison still 20 mg a day

Cell cept has been changed because it did not benefit me,but made me ill ..so now i been put on imuran with my pretnison..

For 6 months..after only my prednison has been reduced to 7 the dokter told me i can get a vaccine..not before…so i still have to wait a few months..

Hi everyone

Now i am confused

Ihave IPF..

And take cortison at the moment 20 mg a day..must keep on taking it try,d Cell cept but that did not do anything fir me..only gave my tummy troubles

But i am adviced not to be vaccinated untill i perhaps can go off the cortison for a while..what is likely not gonna happen..i get realy…[Read more]

Hi Brian..thank you for sharing this..

I believe i have the same that my IPF is causedby acid reflux..i have told my dokter about it..but he kerps telling me its not possible..but i didmy own research and thinking..and observe very carefully whats going on with my body,breathing..and i still believe its the case..i also have IBS what is aswell…[Read more]

Hi,yes i have that when i hade the wrong food..like sugary stuff..aswell if i slouch..if i sit very straith its less..what is helping me to have a small spoon Gaviscon advance…after food..it calms it down