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Amber

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@amber

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    Amber replied to the topic Biopsy… yes or no? in the forum Upcoming Medical Appointments: Q&As 10 months ago

    Hi..perhaps because its still idiopatic..so you can get a chance to understand why you have it? So if lucky you can stop the cause..as long you dont know the cause there wil not be a change…and fibrosis keeps going..( thats what i understoud about my own case)

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    Amber replied to the topic How fast does this progress? in the forum Upcoming Medical Appointments: Q&As 10 months ago

    I just started amonth ago…hoping for good results

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    Amber replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 3 months ago

    Hi there ,

    I am now on prednison still 20 mg a day

    Cell cept has been changed because it did not benefit me,but made me ill ..so now i been put on imuran with my pretnison..

    For 6 months..after only my prednison has been reduced to 7 the dokter told me i can get a vaccine..not before…so i still have to wait a few months..

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    Amber replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 3 months ago

    Hi everyone

    Now i am confused

    Ihave IPF..

    And take cortison at the moment 20 mg a day..must keep on taking it try,d Cell cept but that did not do anything fir me..only gave my tummy troubles

    But i am adviced not to be vaccinated untill i perhaps can go off the cortison for a while..what is likely not gonna happen..i get realy…[Read more]

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    Amber replied to the topic Nasal Congestion and Pulmonary Fibrosis in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago

    Hi Brian..thank you for sharing this..

    I believe i have the same that my IPF is causedby acid reflux..i have told my dokter about it..but he kerps telling me its not possible..but i didmy own research and thinking..and observe very carefully whats going on with my body,breathing..and i still believe its the case..i also have IBS what is aswell…[Read more]

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    Amber replied to the topic Coughing aftr meals in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 6 months ago

    Hi,yes i have that when i hade the wrong food..like sugary stuff..aswell if i slouch..if i sit very straith its less..what is helping me to have a small spoon Gaviscon advance…after food..it calms it down

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    Amber became a registered member 1 year, 7 months ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 6 months ago

      Thanks for joining the PF forums, Amber! Welcome!

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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