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Anna Jones replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 6 months, 3 weeks ago
You’re welcome. I’m glad to know they will post it on the site afterwards. Thank you for that info!
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Anna Jones replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 6 months, 4 weeks ago
I got this in my email today from the Pulmonary Fibrosis Foundation:
PFF is sponsoring a PFF Disease Education Webinar on Progressive Pulmonary Fibrosis:
“What Patients Need to Know” on Sept. 14 at 1 pm CT
Addressing the progression of PF in patients with interstitial lung diseases (ILDs) other than IPF (like radiation-induced pulmonary…[Read more]
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Anna Jones replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 7 months ago
Margaret, Thank you so much! You’ve explained so much, so very clearly. You have summarized it all so beautifully. I didn’t know about the risk with intubation for anesthesia. Important to know.
Now I’m thinking I really might need that CT scan, and not put it off. I did have COVID (had Paxlovid which helped tremendously) so maybe I need…[Read more]
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Anna Jones replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 7 months ago
Natalie, Just wanted to say best wishes to you, too! My PF is also from breast cancer treatment (3 years ago). I also learn a lot from everyone sharing here.
Take care, Anna
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Anna Jones replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 7 months ago
Anne, Regarding your questions about what I know about Prednisone: it is used by many docs to treat inflammation in many different parts of the body, like to treat a bout of inflammation in the intestines for someone with Crohn’s Disease. Many people on here share that they are prescribed Prednisone for brief periods and some people take it d…[Read more]
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Anna Jones replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 7 months ago
Hi Anne, Thank you so much for your kind words. I don’t talk with many people about my PF so this forum is a wonderful relief valve, and very informative and always supportive. The support is the best, and I benefit from supporting others, too!
I’ve done some “deep diving” into medical journal articles and online videos. (Sloan-Kettering has…[Read more]
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Anna Jones replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 7 months ago
Hello Anne,
I am 64 years old and was diagnosed with radiation induced PF in 2019. I have had 3 pulmonologists and none of them have provided or suggested any treatment. (My current doc is in a Center of Excellence for pulmonology.) From what I can understand, the Ofev or Esbriet treatments are not appropriate for this type of ILD. I am cur…[Read more]
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Anna Jones posted a new activity comment 1 year, 5 months ago
Thank you, Charlene! This is a wonderful forum full of helpful people.
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Anna Jones replied to the topic Ipf or not in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 5 months ago
PFCareGiver, I recently found out from my GP that I have collapsed nasal valves – which has been making breathing more difficult and causing nasal drip. It came on slowly.
Try this test – buy some of the nasal strips (ex: Breathe Right Nasal Strips) that people use to open up their nose while they sleep and to prevent snoring and have your mo…[Read more]
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Anna Jones became a registered member 1 year, 5 months ago
Welcome to the PF forums Anna. Thanks for joining us!
Thank you, Charlene! This is a wonderful forum full of helpful people.