Biography

Name

Anna

Last Name

Jones

Nickname

Anna Jones

Gender

Female

Relationship

Patient

Type of Diagnosis

PF of known aetiology

Lung transplantation status

considering later

Supplemental Oxygen

no

Best advice for PF symptom management

I am learning every day from experiences that others are sharing.  I recommend that everyone continue to share and read information.  I have learned info important about my own symptom management from reading the experiences of others.  This is real life, and as grateful as I am for all the scientific research and medical knowledge, I am extremely grateful for the real life experiences shared online of other people with any type of PF (or IPF) condition.  I have gained knowledge and hope!

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Other

How long have you or the person that you are caring for had PF?

since 2019