Biography

Name

anne

Nickname

anne-newsome

Gender

Female

Location

United States

Relationship

Caregiver

Short Bio

My husband is 58 years old and diagnosed three years ago with sarcoidosis. He has not had a biopsy. He is a white male with no family history.  When he was 30 years old he had a routine chest x-ray and told he had lung scarring.  He had no symptoms.  Slowly we noticed changes to his breathing. Today he does not take oxygen or medication.  His oxygen levels are good unless he exerts himself.  He is being monitored by Shands Hospital in Gainesville Fl.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

Shands Hospital, Gainesville,FL

Current medication regimen

none

Lung transplantation status

considering later

Supplemental Oxygen

no

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

28 years

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