Biography

Name

Anne

Nickname

anne-tarantino

Year of Birth

1946

Gender

Female

Location

columbia, md 21044

Relationship

Patient

Short Bio

I have radiation induced pulmonary fibrosis.  I had lung cancer 4 1/2 years ago using a Chemo/radiation protocol.   I am on O2 — 4 — 24/7.  I use O2 — 5– when I’m out getting into my car  and to my scooter and in the pool.  I go to a therapy pool to be able to walk/run/kick for an hour each day.  It’s heavenly!!!  My sweet hubbie is my care taker.  I  read and watch TV too much.  Stuck inside, caused by the virus, from visiting with friends for lunch and playing bridge and shopping.  I do sleep around 10 to 12 hours a day and sit around the rest.  Very, very tired and achy most of the time.   I do wear a smile all the time and try to be happy with my hubby, 2 cats and a dog.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

Johns Hopkins pulmonology.

Current medication regimen

Treatment is Breo and O2. Get nebulizer treatments 4 times a day when I have too much gunk coming up. Go on antibiotics and steroids when I get sick.

Lung transplantation status

considering later

Supplemental Oxygen

yes

Best advice for PF symptom management

I dont have any advice to give.  I’m hoping to get help from this group

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Physician

How long have you or the person that you are caring for had PF?

4 years

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