Anne

I’m still confused about too much O2.  I have been moved to 7 since I plummet when I walk over a minute.  Even the 7 doesn’t.  My pulmonologist has been taken to the hospital and I dont see my new doctor (a 2nd opinion doctore new practice) for a couple of months.  Anyway, I think 7 is too much for sitting since a 3 keeps me at 91/92 and a 5 kee…[Read more]

My fibrosis was caused from my ration treament used to get rid of my lung cancer along with chemo.  It is something that is more often seen in breast cancer  around the muscle or heart.  All of these treatments are not used much anymore.  If fact, even my treatment isn’t used, but I had such yucky lungs and my tumor was right on the heart, I had…[Read more]

I have one stationary concentrator for 24/7 use, 2 small bottles and a refiller to use with the stationary concentrator, one large standing O2 tank for use when the electricity goes out, and a small portable battery operated condensor all paid by medicare.

My pulmonologist requested 24/7 O2 in house.  He also said I needed portable O2 for use…[Read more]

I have a respironics mini portable condensor and medicare covers it and it is not a portable cylinder tank.  Perhaps if you go back to your oxygen provider and get someone further up in their “line of command” you will be able to get you a portable condesor rented and paid by medicare.  You pulmonologist has to prescribe it for you.

anne

I cant find a company to sell the 8L/min portable.  Do you know of any?

Douglas,

I just went on line to Inogen and saw their portable concentrator only goes up to 5 liters .like the other portable concentrators.  Please let me know the model # for your machine so I can find any  still available.

thanks,

anne

Bert, you are a good writer—I agree with your statement 100%

When flying and using a concentrator, you cant be in the first row, nor in the isle seat.  You can be in the 2nd row and have to be in the window seat.  The concentrator stays under the seat in front of me or in the middle seat (if available).  I keep an extra battery down with me and other batteries in the upper compartment of the plane.  If fly…[Read more]

My Respirontics portable condenser is only about 5 pounds, but you have to add the weight of the batteries.  It has a handle and a strap on it’s bag.  I don’t pay have a co-pay for mine.

anne

Randy,

There are no portable units that are strong enough for you to use.  If you want to walk, you’ll have to use the big O2 bottle and roll it around with you.  Or, even use a walker or wheelchair and have the big bottle in the chair and you push it.

The portable units are pulse and 5 is supposed to be like a 2.5.  I thought my 5 pulse gave me…[Read more]

I know of no one who will try out a condenser.  You can get a refurbished on for about 1/2 price.  Again, if you have medicare, there’s no problem with trying it out.

You can put a 5 pound bag of sugar in a strap over your shoulder and wear it around at home.

If you use a walker, then the walker seat can carry the condenser for you.  I do th…[Read more]

I have used the Respironics mini for the last 4 years.   I get mine through Medicare by Johns Hopkins pharaquip.  It seems to bread once a year and I immediately get a new one.  When I was over seas and quit, I had a hard time.

I am on 3 when I sit or am on my scooter, but have moved from a 5 to 7 when walking to the restroom from my chair or my…[Read more]

Hi,

I was amazed that there are so many of us over 55 who have this disease.  I also am surprised to read about the heart rates around 50 when O2 is in 50’s and then bounce up to 110 or 120 as O2 rate goes up, then go back to your normal rate.  My hubby told me my heart rate of 50 wasn’t possible, it had to be an error with my tester.  Now I kn…[Read more]

I’m to go on a face to face with a doctor tomorrow.  I’ll see if he knows how I can order a medical grade pulse oximeter—that is, if I remember!!!  Thank you for your suggestion.  I remember asking my oncologist’s staff about ordering one, but they didn’t know.  Maybe my endocrine doctor will know.