• Anne posted an update 1 year, 6 months ago

    My radiation induced pulmonary fibrosis comes from treatment of my lung cancer 4 years ago with radiation treatements along with low grade chemotherapy. I was fine untile 6 months after radiation and then I needed oxygen — not too much. 4 to 5 when walking and 1 to 2 when sitting. This last year I couldn’t walk with a 5 any more (except while in a pool). The doctor tried a 7 to 8 for my walking, but even walking 15-20 feet I drop down to the low 70s. Sitting is no problem with the 7 ox2 on. I asked my doctor >>>>>>>>>
    “I had the breathing test and it looked terrible compared to my 2015 test. But my CAT scan showed nothing has changed since my last scan. a year ago.

    What is going on with my lungs? What can be done with or for them? What L number of O2 will help me be able to walk and do anything? Right now I’m on 7L but that isn’t enough when I moving about upright..

    I believe I’m going to get a hover round indoor wheelchair to be able to move about and get things for myself instead of asking my hubby to do it for me. Does this sound appropriate to you?”

    he wrote back<<<<<<<<<<<<

    "Not quite sure. No response to steroids. May be extra fluid.
    I have no control of who gets vaccine but you are definitely in the high risk category. "

    I have no other appointment listed for him. I'm going to get in touch with the group to schedule another appointment. I've gotten another doctor's name from my oncologist and will try him after the first (he's a hospital doctor and not working over the holidays) If I can get the covis vaccine, I'll go to Houston–MDAnderson for an appointment–they're the best for lung cancer in US.

    But for now, any one with fibrosis caused from radiation induced? In their 60s, 70s or 80s? How are you coping?
    anne

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