Biography

Name

Barbara R.

Nickname

barbara-r

Year of Birth

3/8/48

Gender

Female

Location

Massachusetts

Relationship

Patient

Short Bio

72 years old, active  person. My. brother had lung transplant and lived for almost 2 wonderful years. We believe he died of Covid 19 in Jan. of this year.

Type of Diagnosis

familial/genetic PF

Treatment / Medical Facility

Mass. General Hospital, Boston. Ma

Current medication regimen

esbriet

Lung transplantation status

currently in evaluation process

Supplemental Oxygen

yes

Best advice for PF symptom management

have a good family and friend  support system if possible

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

8 years

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