Brenda

I too, feel that I share too much with one of my sons. My husband died 5 years ago so he’s really been a help to me. He also goes to my Pulmonary doctor appointments. I feel like I  have to try to make my breathing seem normal around friends. It sounds silly but adjusting to this diagnosis is hard. I am on oxygen. My number drops to high 70’s to…[Read more]

Charlene. I tore my tricept off my bone right before Christmas last year. I did go to therapy because I chose to not have surgery. I wasn’t sure how hard it would be on my lungs. The therapy wasn’t hard. I still had problems doing the exercises because I would get short of breath. I was using my oxygen and still dropped to to the 80’s. I was set…[Read more]

I have papers on tips from my physical therapist. I was doing many of the tips as I also have back issues.I was told to place most things at shoulder level. The reaching and bending takes more energy. I also have a Roomba and a light weight Shark for quick cleaning. I don’t wash walls anymore. I use a dust mop to get the ceiling and walls dusted.…[Read more]

My dad died from emphysema. He was at 25% lung capacity when he started failing fast. He was put on morphine at the end and he did not wake the last two days. I pray for that kind of ending for me. I was diagnosed after endless testing last July. In June they considered a PF diagnosis.  In July I was put on oxygen for activities.  I’m now on it 2…[Read more]

I hope my oxygen usage doesn’t go as high as many of yours. I’m only at 2 at night and 3 when I’m up and about. My nasal passage seems dry all the time. Then it hurts. Then I start feeling the cannula in my nose and then I feel like I could crawl out of my skin. I have a couple questions for you all. Why aren’t we supposed to use Vaseline in our…[Read more]

What is PF trauma? How or why do we need Palliative care?

I was diagnosed last June, officially. I was referred to a Pulmonary Doctor May of 2020 by my Family doctor. Because of Covid it was hard to get an appointment but I finally did April of 2021. I’m reading as much as I can about this disease. I have been on oxygen since July 2021. Seems…[Read more]