@beatrice-mair-pierre
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Beatrice Mair Pierre replied to the topic Traveling with Pulmonary Fibrosis in the forum Join the Discussion: Welcome to all PF/IPF Patients 12 months ago
I was wondering the same thing for my husband. He uses E tanks and about 4 – 5 liters while at rest. We are considering living in Florida, but I don’t know how we would make the trip.
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Beatrice Mair Pierre posted a new activity comment 2 years, 9 months ago
Thank you
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Beatrice Mair Pierre posted an update 4 years, 1 month ago
Hi. My husband has Pulmonary Fibrosis for a long time and has been on Esbriet. I am hoping that there will be new drugs somewhere in the near future or clinical trials. He is ineligible to get a lung transplant because it would be too risky.
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Beatrice Mair Pierre became a registered member 4 years, 5 months ago
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Welcome to the PF forums Beatrice. Thanks for joining us!
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Thank you
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Hi Beatrice,
Welcome to the PF forums – glad you’re here and thanks for sharing a bit about your husband. Has he been tolerating the Esbriet okay? I don’t have any experience with it as I am on the other anti-fibrotic drug, Ofev, but I know lots of people do well on both drugs. Yes, wouldn’t it be so nice to see some new drugs available for those…[Read more]