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Bill Cusack

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@bill-cusack

@johnl I’m on OFEV. It took some time to realize that ANY dairy products cause intestinal problems. I could not take the OFEV without Imodium. Doc says my IPF is progressing very slow. It has been two years since diagnosis. Doc prescribed Pulmonary Rehab. I learned a lot there. I still go even though Medicare coverage stopped. You should know […] View
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  • Profile picture of Bill Cusack

    Bill Cusack replied to the topic Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 4 months ago

    48 hours with new right lung

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    Bill Cusack replied to the topic Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 4 months ago

    Thanks for sharing. Im 73 on o2 7×24. Maybe i missed something but just to be thorough – Many use tubing swivel connectors for low pressure to daisy chained cannulas to go 100+ feet from the concentrators. Inogen provides these with the cannulas.

  • Profile picture of Bill Cusack

    Bill Cusack replied to the topic Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 4 months ago

    Regarding learning about  the many ways the oxygen in usa:

    1.) I learned a lot at pulmonary rehab. Medicare pays for a very few hours. My provider runs about 10 patients at a time with 5 different 15 minute routines. 1-Treadmill, 2-NuStep, 3-Kazoo(Amazon-<span id=”productTitle” class=”a-size-large” style=”box-sizing: border-box; text-rendering:…[Read more]

  • Profile picture of Bill Cusack

    Bill Cusack replied to the topic Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 4 months ago

    I tried oxymizer products. My portable concentrator could not provide sufficient O2 for exercise at health club. The.Oxymizer moustache and pendant tubes increased my spo2 for exercise.

    https://pubmed.ncbi.nlm.nih.gov/3709245/

  • Profile picture of Bill Cusack

    Bill Cusack replied to the topic Am I Too Old for A Lung Transplant? in the forum Pre/Post Lung Transplant 2 years, 8 months ago

    Some  are being evuated at age 73. Last high res CT scan showed a 6mm nodule. I am on hold for 3 months when we get a follow-up high res CT scan – Hoping there is no growth in the nodule. I go to pulmonary Rehab 3 time per week. And feel great

  • Profile picture of Bill Cusack

    Bill Cusack replied to the topic Oxygen Questions in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 8 months ago

    I’m having trouble getting an emergency oxygen tank from my oxygen supplier. I’m told Medicare pays for a stationary and a portable Oxygen supply. My supplier only handles electric oxygen concentrators. My portable came with 2 batteries. Each battery lasts one hour at 3L. I’m on 4th floor of all electric condo building including elevator. There…[Read more]

  • Profile picture of Bill Cusack

    Bill Cusack posted an update 3 years, 4 months ago

    @johnl I’m on OFEV. It took some time to realize that ANY dairy products cause intestinal problems. I could not take the OFEV without Imodium. Doc says my IPF is progressing very slow. It has been two years since diagnosis. Doc prescribed Pulmonary Rehab. I learned a lot there. I still go even though Medicare coverage stopped.
    You should know if…[Read more]

    • Profile picture of John L
      John L replied 3 years, 4 months ago

      Thanks Bill. Grateful to any & all advice with how to move forward…

  • Profile picture of Bill Cusack

    Bill Cusack's profile was updated 4 years, 2 months ago

  • Profile picture of Bill Cusack

    Bill Cusack became a registered member 4 years, 2 months ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 4 years, 2 months ago

      Hi Bill, thanks for joining the PF forums. Welcome!

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