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Don

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@blackhillsdon

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    Don posted a new activity comment 1 year, 1 month ago

    It’s nice to read so many replies for problems and symptoms that I have and that understand this disease. Most of the people I know don’t have any idea what this is like so nice to correspond with fellow travelers in this journey of life and playing the cards we’re dealt. Keep up the good work you do as I’ve read many of your posts.

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      Christie Patient replied 1 year, 1 month ago

      Thank you! I’m so glad it’s been helpful. I always appreciate feedback from readers 🙂 I hope you find kinship and support here, as well as answers for any questions that come up along your journey.

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    Don started the topic Has anyone tried the INOGEN TAV(tidal assist ventilator? in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 1 month ago

    I saw a comment about this recently and called inogen.  They weren’t very specific about how it works and who it would be the most beneficial to.  I have had IPF for about 6 years now and am currently on oxy 24/7.  My current levels are 10 LPM with activity and 5 to 6 sitting in my recliner.  I can’t get out and walk at all anymore but sure wo…[Read more]

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    Don became a registered member 1 year, 1 month ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 1 month ago

      Welcome to the forum community Don, we’re glad you found us!

    • Profile picture of Don
      Don replied 1 year, 1 month ago

      It’s nice to read so many replies for problems and symptoms that I have and that understand this disease. Most of the people I know don’t have any idea what this is like so nice to correspond with fellow travelers in this journey of life and playing the cards we’re dealt. Keep up the good work you do as I’ve read many of your posts.

      • Profile picture of Christie Patient
        Christie Patient replied 1 year, 1 month ago

        Thank you! I’m so glad it’s been helpful. I always appreciate feedback from readers 🙂 I hope you find kinship and support here, as well as answers for any questions that come up along your journey.

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