Biography

Name

Bob Collins

Nickname

bob-collins

Year of Birth

1945

Gender

Male

Location

Barnet, North LOndon

Relationship

Patient

Short Bio

Diagnosed in June 2018, I was referred to the Royal Brompton Hopital, and I started taking OFEV in January 2019.

I must say that my feeling is that the OFEV is actualy improving my lungs, not merely slowing down the deterioration. I’ll find out at my next testwhich is in March 2020, but I am able to do things now that I was unable to do earlier this year.

I have learnt to manage the side effects with diet and Immodium.

 

Type of Diagnosis

IPF

Treatment / Medical Facility

Royal Brompton Hospital

Current medication regimen

Ofev 150mg twice daily

Lung transplantation status

to be determined

Supplemental Oxygen

no

Best advice for PF symptom management

Regular excercise. Don’t eat large meals. avoid high fibre foods.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Other

How long have you or the person that you are caring for had PF?

18 months

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