Pulmonary Fibrosis News Forums | bradley | Activity https://pulmonaryfibrosisnews.com/forums/members/bradley88/activity/ Activity feed for bradley. Sun, 19 Apr 2026 14:02:24 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 1ebae702f1d545765dbf0a04702d0195 bradley replied to the discussion Staying overnight for medical treatment----I use oxygen 24/7---- in the forum Supplements and Non-traditional Management of PF https://pulmonaryfibrosisnews.com/forums/forums/topic/staying-overnight-for-medical-treatment-i-use-oxygen-24-7/#post-38406 Wed, 28 May 2025 00:41:49 -0500 Reply to Staying overnight for medical treatment----I use oxygen 24/7----

I have used the Inogen One portable for years now. It’s the G3 model. It’s heavy because of the battery. It has been reliable and beeps only when I forget and do mouth breathing to warn me.

Mark

]]> 69f9dccc5406be06192e4c81aa3bd022 bradley replied to the discussion New user to Pirfenidone in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/new-user-to-pirfenidone/#post-37070 Tue, 21 May 2024 20:55:57 -0500 Reply to New user to Pirfenidone

Hi Riley, I need a full belly to take Perfenidone or I get very dizzy and a bit nauseous. I’ve been taking the full 801mg times 3 daily for 2 months. Have something substantial to eat before dosage.

]]> 2791585b6abf871a9f03588a042d360b bradley replied to the discussion Drug Induced IPF (unknown cause) Meds? in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/drug-induced-ipf-unknown-cause-meds/#post-36960 Thu, 25 Apr 2024 21:37:36 -0500 Reply to Drug Induced IPF (unknown cause) Meds?

I was born 1942. Have had IPF as diagnosed for 4 1/2 years and started on pirfenidone just 3 months ago. Regarding your survey, I can say yes to questions 1, 2 and 3. As for scaring, I can’t say that it was seen before being diagnosed with IPF. Smoking is another question you can ask. I smoked cigarettes for 25 years quiting in 1986. Also…

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]]> 03fe6a6e324f391cd8ced6e729069de0 bradley replied to the discussion Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy https://pulmonaryfibrosisnews.com/forums/forums/topic/zinc-in-the-role-of-lung-fibrosis/#post-35345 Thu, 06 Jul 2023 20:22:17 -0500 Reply to Zinc in the Role of Lung Fibrosis

Almost a year ago I started 50mg Zinc Picolinate daily. Along with my daily vitamin my zinc intake is a little above recommended max dosage. I don’t think it has done much for my fibrosis but I avoided a nasty virus that went through our household. I am 3 1/2 years into this ipf <u>without</u> meds.

Mark Anderson

]]> 72db960dd2dd06805d20e000cb5cd7ba bradley replied to the discussion Healing scar tissue zoom call recording in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/healing-scar-tissue-zoom-call-recording/#post-34045 Thu, 05 Jan 2023 20:58:31 -0600 Reply to Healing scar tissue zoom call recording

Hi Westley,

I too would like to see the zoom recording if you can supply that link.  That know you so much.

Mark Anderson

The last should be thank you so much.

]]> 4a7c0f94ce4f5d4dab49cca6d2dd93ee bradley replied to the discussion Healing scar tissue zoom call recording in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/healing-scar-tissue-zoom-call-recording/#post-34044 Thu, 05 Jan 2023 20:56:42 -0600 Reply to Healing scar tissue zoom call recording

Hi Westley,

I too would like to see the zoom recording if you can supply that link.  That know you so much.

Mark Anderson

]]> 85e912bc7153da6735a3b569a22e719e bradley replied to the discussion Grief Support Ideas in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/grief-support-ideas/#post-33405 Thu, 27 Oct 2022 20:56:13 -0500 Reply to Grief Support Ideas

Hi Wendy,
You are right; death hath no sting. I don’t worry about my own suffering as I think that will be handled. My big concern is family suffering through this and watching my discomfort. I am 80 so no big deal but I an sad to see that younger people have IPF and can’t imagine what they are facing.

Mark

]]> 51b5d6edf58af7ab37b56c4d515411c5 bradley replied to the discussion New Zoom meeting - taking the bull by the horn in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/new-zoom-meeting-taking-the-bull-by-the-horn/#post-33314 Thu, 20 Oct 2022 02:40:50 -0500 Reply to New Zoom meeting - taking the bull by the horn

I have reached the end of year 3 after being diagnosed. My last lung function test had me at 74% but I feel I am getting worse. I do not take meds as they are too expensive and with unacceptable side effects. I am not on oxygen but have a portable concentrator.
I would like to hear from others.

Mark Anderson
mba999@comcast.net

]]> 0f2be7189a790b1aea61e26881926c58 bradley posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/35278/#acomment-35323 Tue, 04 Oct 2022 22:07:09 -0500 Charlene, your wonderful. I see many people take OFEV and Esbriet. I would like to ask anyone how that’s affordable. I can’t handle hundreds or thousands they ask. I’m about 3 years into my IPF diagnosis. Thank you for your work here Charlene.
Mark

In reply to - Lora became a registered member ]]> e59a7a29d99c199eaa78d3d20c5c8007 bradley posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/22749/#acomment-22752 Sat, 03 Oct 2020 23:18:24 -0500 Thank you

In reply to - bradley became a registered member ]]> 54a72fdc75bfc0e1e0ca5ee7e668857e bradley became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/22749/ Sat, 03 Oct 2020 22:56:52 -0500 3