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Mark replied to the topic Healing scar tissue zoom call recording in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months ago
Hi Westley,
I too would like to see the zoom recording if you can supply that link. That know you so much.
Mark Anderson
The last should be thank you so much.
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Mark replied to the topic Healing scar tissue zoom call recording in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months ago
Hi Westley,
I too would like to see the zoom recording if you can supply that link. That know you so much.
Mark Anderson
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Mindy and
Mark are now friends 6 months ago
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Mark replied to the topic Grief Support Ideas in the forum Join the Discussion: Welcome to all PF/IPF Patients 7 months, 1 week ago
Hi Wendy,
You are right; death hath no sting. I don’t worry about my own suffering as I think that will be handled. My big concern is family suffering through this and watching my discomfort. I am 80 so no big deal but I an sad to see that younger people have IPF and can’t imagine what they are facing.Mark
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Mark replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 7 months, 3 weeks ago
I have reached the end of year 3 after being diagnosed. My last lung function test had me at 74% but I feel I am getting worse. I do not take meds as they are too expensive and with unacceptable side effects. I am not on oxygen but have a portable concentrator.
I would like to hear from others.Mark Anderson
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Mark posted a new activity comment 8 months ago
Charlene, your wonderful. I see many people take OFEV and Esbriet. I would like to ask anyone how that’s affordable. I can’t handle hundreds or thousands they ask. I’m about 3 years into my IPF diagnosis. Thank you for your work here Charlene.
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Mark posted a new activity comment 2 years, 8 months ago
Thank you
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Mark became a registered member 2 years, 8 months ago
https://www.dropbox.com/s/dazck2mnjxy30fb/video1067307982.mp4?dl=0