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Mark

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@bradley88

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    Mark replied to the topic Healing scar tissue zoom call recording in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 2 weeks ago

    Hi Westley,

    I too would like to see the zoom recording if you can supply that link.  That know you so much.

    Mark Anderson

    The last should be thank you so much.

    • Profile picture of Christie Patient
      Christie Patient replied 2 months, 2 weeks ago

      https://www.dropbox.com/s/dazck2mnjxy30fb/video1067307982.mp4?dl=0

  • Profile picture of Mark

    Mark replied to the topic Healing scar tissue zoom call recording in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 2 weeks ago

    Hi Westley,

    I too would like to see the zoom recording if you can supply that link.  That know you so much.

    Mark Anderson

    • Profile picture of Christie Patient
      Christie Patient replied 2 months, 2 weeks ago

      https://www.dropbox.com/s/dazck2mnjxy30fb/video1067307982.mp4?dl=0

  • Profile picture of Mindy

    Mindy and Profile picture of MarkMark are now friends 3 months, 2 weeks ago

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    Mark replied to the topic Grief Support Ideas in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 months, 4 weeks ago

    Hi Wendy,
    You are right; death hath no sting. I don’t worry about my own suffering as I think that will be handled. My big concern is family suffering through this and watching my discomfort. I am 80 so no big deal but I an sad to see that younger people have IPF and can’t imagine what they are facing.

    Mark

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    Mark replied to the topic New Zoom meeting – taking the bull by the horn in the forum Join the Discussion: Welcome to all PF/IPF Patients 5 months ago

    I have reached the end of year 3 after being diagnosed. My last lung function test had me at 74% but I feel I am getting worse. I do not take meds as they are too expensive and with unacceptable side effects. I am not on oxygen but have a portable concentrator.
    I would like to hear from others.

    Mark Anderson
    [email protected]

  • Profile picture of Mark

    Mark posted a new activity comment 5 months, 3 weeks ago

    Charlene, your wonderful. I see many people take OFEV and Esbriet. I would like to ask anyone how that’s affordable. I can’t handle hundreds or thousands they ask. I’m about 3 years into my IPF diagnosis. Thank you for your work here Charlene.
    Mark

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    • Profile picture of Christine McCann
      Christine McCann replied 5 months, 2 weeks ago

      Check out gentech, ask you pulmonologist about the financial help for available.

  • Profile picture of Mark

    Mark posted a new activity comment 2 years, 5 months ago

    Thank you

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    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 5 months ago

      You are most welcome!

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    Mark became a registered member 2 years, 5 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 5 months ago

      Hello Mark, we are pleased to have you as a member of your pulmonary fibrosis forum. Welcome!

      • Profile picture of Mark
        Mark replied 2 years, 5 months ago

        Thank you

        • Profile picture of Mark Koziol
          Mark Koziol replied 2 years, 5 months ago

          You are most welcome!

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