@brendacolvin
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Brenda replied to the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 3 weeks ago
Hi, Brenda Colvin. I live in Florida and was diagnosed with IPF little over 2 years ago. I am on no meds yet. Just had CT scan and full blood work done 2 weeks ago. My Pulmonologist said no progression.I still have a very full life. I play golf and walk and still do all my housework. I have an occasional cough with phlegm sometimes. Not…[Read more]
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Brenda replied to the topic Wrestling with the End Stage of Pulmonary Fibrosis in the forum Living with Pulmonary Fibrosis: 50+ 3 months, 4 weeks ago
Reading these comments have been very informative. I was diagnosed 2 years ago. No medication as of yet but going for CT and extensive blood work. Pulmonologist appt. 17th of May. I am a Christian and I know God has a plan for me. Whatever comes I know he will see me through. But I agree no one wants to die gasping for breath. Hopefully all these…[Read more]
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Brenda replied to the topic Newby in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 1 week ago
Hi Gail,I was diagnosed with IPF 2 years ago snd I’m still not on medication. I have had 2 CT scans. But last one showed no progression. Only have trouble breathing sometimes if I walk really fast or going up a hill. Cough in the mornings sometimes but have never been prescribed medication. I go back in April and will see what pulmonologist has t…[Read more]
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Brenda replied to the topic Esbriet – Insurance approval in the forum Esbriet (Pirfenidone) 6 months, 3 weeks ago
Brenda Colvin. I read an article saying Esbriet and Ofev are not cost effective in the U.S. is that true or do most of you live out of the states. I know it’s expensive but didn’t we wouldn’t have access to it here. I live in Florida. Not on medication yet but want to know options when time comes.
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Brenda replied to the topic Happy Holidays! in the forum Join the Discussion: Welcome to all PF/IPF Patients 7 months, 3 weeks ago
Merry Christmas Charlene! I do plan to visit my daughter. I have been vaccinated snd boosted. Still taking precautions and wearing mask. I hope everyone has a happy holiday! Take care and be safe.
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Brenda replied to the topic Chronic Illness Gift Guide in the forum Join the Discussion: Welcome to all PF/IPF Patients 8 months ago
David not sure where you live but the Binax kits here in Florida are $14 at Sams Club
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Brenda replied to the topic Inhaler Use for Pulmonary Fibrosis in the forum Diagnosis Information and General Questions 8 months ago
Charlene I am so thankful we have this forum to try and stay on top of new things. I am my still not on medication. I see my pulmonologist in April 2022. Guess we will go from there.
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Brenda replied to the topic Cardiopulmonary exercise (CPET) in the forum Diagnosis Information and General Questions 8 months, 2 weeks ago
I had the CT scan and the breathing test done before my diagnosis. I live in Florida and was diagnosed 2 yrs ago.
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Brenda replied to the topic Jill Tanner ♥️ in the forum In Loving Memory 9 months, 1 week ago
Rest In Peace Jill
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Brenda replied to the topic Post-nasal Drip: Another Ailment to Deal With in the forum Diagnosis Information and General Questions 10 months ago
Brenda Colvin. I too have a problem with post nasal drip. Diagnosed two years ago but on no medication as of yet.I go through tissues like crazy. Have tried Claritin and Allegra. They don’t work very well. Will try Flonase. Have a morning cough sometimes with lots of phlegm. So appreciate reading everyone’s comments. We know we are not in this alone.
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Brenda posted a new activity comment 10 months, 1 week ago
Thanks Charlene. I was diagnosed with IPF 2 yrs ago this month. Still on no medication. Doing okay but still not sure what to expect. Really have lots of anxiety. Not sure if anxiety makes it a little harder to breathe or at times just get out of breath a little. Especially playing golf any going uphill. Not scheduled to see pulmonologist again…[Read more]
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Brenda became a registered member 10 months, 1 week ago
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Welcome to the PF forums Brenda – thanks for joining us!
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Thanks Charlene. I was diagnosed with IPF 2 yrs ago this month. Still on no medication. Doing okay but still not sure what to expect. Really have lots of anxiety. Not sure if anxiety makes it a little harder to breathe or at times just get out of breath a little. Especially playing golf any going uphill. Not scheduled to see pulmonologist again…[Read more]
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Hi Brenda,
Thanks for sharing some of your diagnostic experience with us, and glad to hear you are doing okay and aren’t having to deal with the medication side effects; those can be tough. Anxiety certainly can exacerbate symptoms of IPF, so its important to develop some strategies to reduce the anxiety when you can… I know, way easier said…[Read more]
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Hi Brenda,
Thanks for sharing some of your diagnostic experience with us, and glad to hear you are doing okay and aren’t having to deal with the medication side effects; those can be tough. Anxiety certainly can exacerbate symptoms of IPF, so its important to develop some strategies to reduce the anxiety when you can… I know, way easier said…[Read more]