Biography

Name

Cheryl W.

Nickname

cheryl-w

Year of Birth

1963

Gender

Female

Location

MA

Relationship

Patient

Short Bio

I was recently diagnosed with PF & ILD.   I’ve been on oxygen for 2 months.   Tapering off Prednisone after being on that foe 2 months as well.  Although I feel great my O2 levels decrease with exertion.  The only symptom I have is mild to negligible dry cough.   I am currently taking Atovaquone to get my immune system back on track from the prednasone.   I will be taking Esbriat waiting for approval from my insurance company.   Also will be starting a Pulmonary Rehab program.   I am determined to live a long and happy life .

Type of Diagnosis

IPF

Treatment / Medical Facility

Atovaquone, Esbriat, Prednisone

Current medication regimen

Taking 1500 mg of Atovaquone daily also taper off prednisone for 60 mg now taking 40 mg

Lung transplantation status

currently in evaluation process

Supplemental Oxygen

yes

Best advice for PF symptom management

Stick to your Pulmonary instructions to a T

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Approximately 1 year

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