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Cheryl W. replied to the topic how long can you take Esbriet? in the forum Esbriet (Pirfenidone) 7 months, 1 week ago
Great question.
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Cheryl W. replied to the topic How Pulmonary Fibrosis Complicates Simple Appointments and Everyday Tasks in the forum Join the Discussion: Welcome to all PF/IPF Patients 7 months, 1 week ago
Good Morning. As a patient newly diagnosed with ILD/PF. Could someone taking Pirofedene or Olef let me know if they have experienced substantial weight loss. I will be starting Pirofedene the first week of December as I am now tapering off Prednisone. My symptoms have improved immensely from the Prednisone. I will be starting P…[Read more]
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Cheryl W. posted a new activity comment 7 months, 1 week ago
Gppd Morning. Glad there are groups to share our stories with. Makes it more comforting knowing we are not alone
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Cheryl W. replied to the topic Life span in the forum Diagnosis Information and General Questions 7 months, 2 weeks ago
Good Morning. I was diagnosed in March with IPF & ILD. I never heard of these diseases let alone ever think I would have a rare incurable illness especially at 59 years old. Hearing this news was very hard for me to swallow. I’ve since made progress. I was on Prednasone for 2 months i started tapering off 11 days ago . I was put on oxyge…[Read more]
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Cheryl W. became a registered member 7 months, 2 weeks ago
Welcome to the PF forums Cheryl, we’re glad you found us.
Gppd Morning. Glad there are groups to share our stories with. Makes it more comforting knowing we are not alone