Log In or Register to Join The Conversation!
  • hello my dear friend—so glad to hear  from you and delighted trip is going very well–pictures are fantastic, and i hope swimming with the dolphin was fun!!! –many hugs & much love! Carmela!!!

  • hi Charlene,

    Usually my sister goes with me to help manage the tanks…but if I am discussing something important regarding the health issues, she does come in to the office with me
    to be that second pair of ears–prompts another thought for those of us who go to the appt alone–what about recording? traditional style or a smartphone app-just a…[Read more]

  • Hi Charlene,

    Good topic, I am interested in what others say and shared information is what keeps all of us going.

    I’m on oxygen 24/7. Cannulas are impossibly uncomfortable. My provider over the 3 years has given me several different ones to try. West Med adult super soft is the most comfortable for me. They are available on Amazon if the…[Read more]

  • Carmela Vasta posted a new activity comment 1 year, 2 months ago

    Hi Charlene,

    Great to hear from you; I thought I had messed up the registration process.
    I had to research PAH–it’s difficult keeping the information straight– I gather this is a recent diagnosis? In my case, congestive heart failure was a result of the lower ventricle sending the bad oxygen blood to the lungs thus producing the fluid that…[Read more]

    • Hi Carmela,

      Not at all, my deepest apologies for the delay – sometimes it is tough to keep on top of my email notifications and replies! You did great with the registration process.

      Yes, PAH – Pulmonary Arterial Hypertension. I haven’t been formally diagnosed with it, but the cardio-pulmonary team here keeps a close eye on my pulmonary pressures…[Read more]

  • I have researched this disease since I was diagnosed in 2016. My focus is the impact of rheumatoid arthritis on interstitial pulmonary fibrosis and visa versa. As a former educator I consider myself a lifelong learner. To that end, in the interest of research, I am a full body donor. Not a difficult decision for me to make because research…[Read more]

  • Carmela Vasta posted a new activity comment 1 year, 3 months ago

    Hi Charlene—Thanks so much…I’ve actively been reading your articles and those of our beloved Kim Fredrickson since I was diagnosed with interstitial pulmonary fibrosis in March 2016. These sites have been the source of my knowledge about the disease. When you posted the article about your legs and feet swelling, and I couldn’t reply without…[Read more]

    • Hi Carmela,

      Thank you for your kind words about my columns and about our Kim. She’d want nothing more than having us continue to support one another, so I am glad you’re here and we can help each other. Sorry to hear about your diagnosis – you were diagnosed one month before I was. I’m glad the site has been a source of information about the…[Read more]

      • Hi Charlene,

        Great to hear from you; I thought I had messed up the registration process.
        I had to research PAH–it’s difficult keeping the information straight– I gather this is a recent diagnosis? In my case, congestive heart failure was a result of the lower ventricle sending the bad oxygen blood to the lungs thus producing the fluid that…[Read more]

        • Hi Carmela,

          Not at all, my deepest apologies for the delay – sometimes it is tough to keep on top of my email notifications and replies! You did great with the registration process.

          Yes, PAH – Pulmonary Arterial Hypertension. I haven’t been formally diagnosed with it, but the cardio-pulmonary team here keeps a close eye on my pulmonary pressures…[Read more]

  • Carmela Vasta became a registered member 1 year, 3 months ago

    • Welcome to the PF forums Carmela, thanks for joining us!

      • Hi Charlene—Thanks so much…I’ve actively been reading your articles and those of our beloved Kim Fredrickson since I was diagnosed with interstitial pulmonary fibrosis in March 2016. These sites have been the source of my knowledge about the disease. When you posted the article about your legs and feet swelling, and I couldn’t reply without…[Read more]

        • Hi Carmela,

          Thank you for your kind words about my columns and about our Kim. She’d want nothing more than having us continue to support one another, so I am glad you’re here and we can help each other. Sorry to hear about your diagnosis – you were diagnosed one month before I was. I’m glad the site has been a source of information about the…[Read more]

          • Hi Charlene,

            Great to hear from you; I thought I had messed up the registration process.
            I had to research PAH–it’s difficult keeping the information straight– I gather this is a recent diagnosis? In my case, congestive heart failure was a result of the lower ventricle sending the bad oxygen blood to the lungs thus producing the fluid that…[Read more]

            • Hi Carmela,

              Not at all, my deepest apologies for the delay – sometimes it is tough to keep on top of my email notifications and replies! You did great with the registration process.

              Yes, PAH – Pulmonary Arterial Hypertension. I haven’t been formally diagnosed with it, but the cardio-pulmonary team here keeps a close eye on my pulmonary pressures…[Read more]

Copyright © 2017-2020 All rights reserved.

©2020 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending
or

Log in with your credentials

or    

Forgot your details?

or

Create Account