@carmela
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Carmela Vasta replied to the topic Aloha from Hawaii in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 3 months ago
hello my dear friend—so glad to hear from you and delighted trip is going very well–pictures are fantastic, and i hope swimming with the dolphin was fun!!! –many hugs & much love! Carmela!!!
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Carmela Vasta replied to the topic Having Someone Accompany You to Medical Appointments in the forum Upcoming Medical Appointments: Q&As 3 years, 4 months ago
hi Charlene,
Usually my sister goes with me to help manage the tanks…but if I am discussing something important regarding the health issues, she does come in to the office with me
to be that second pair of ears–prompts another thought for those of us who go to the appt alone–what about recording? traditional style or a smartphone app-just a…[Read more] -
Carmela Vasta replied to the topic The Frequency of Changing Your Nasal Cannula in the forum Living with Pulmonary Fibrosis: 50+ 3 years, 6 months ago
Hi Charlene,
Good topic, I am interested in what others say and shared information is what keeps all of us going.
I’m on oxygen 24/7. Cannulas are impossibly uncomfortable. My provider over the 3 years has given me several different ones to try. West Med adult super soft is the most comfortable for me. They are available on Amazon if the…[Read more]
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Carmela Vasta posted a new activity comment 3 years, 7 months ago
Hi Charlene,
Great to hear from you; I thought I had messed up the registration process.
I had to research PAH–it’s difficult keeping the information straight– I gather this is a recent diagnosis? In my case, congestive heart failure was a result of the lower ventricle sending the bad oxygen blood to the lungs thus producing the fluid that…[Read more] -
Carmela Vasta posted an update in the group
Research and Development 3 years, 7 months agoI have researched this disease since I was diagnosed in 2016. My focus is the impact of rheumatoid arthritis on interstitial pulmonary fibrosis and visa versa. As a former educator I consider myself a lifelong learner. To that end, in the interest of research, I am a full body donor. Not a difficult decision for me to make because research…[Read more]
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Carmela Vasta joined the group
Research and Development 3 years, 7 months ago -
Carmela Vasta posted a new activity comment 3 years, 7 months ago
Hi Charlene—Thanks so much…I’ve actively been reading your articles and those of our beloved Kim Fredrickson since I was diagnosed with interstitial pulmonary fibrosis in March 2016. These sites have been the source of my knowledge about the disease. When you posted the article about your legs and feet swelling, and I couldn’t reply without…[Read more]
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Hi Carmela,
Thank you for your kind words about my columns and about our Kim. She’d want nothing more than having us continue to support one another, so I am glad you’re here and we can help each other. Sorry to hear about your diagnosis – you were diagnosed one month before I was. I’m glad the site has been a source of information about the…[Read more]
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Hi Charlene,
Great to hear from you; I thought I had messed up the registration process.
I had to research PAH–it’s difficult keeping the information straight– I gather this is a recent diagnosis? In my case, congestive heart failure was a result of the lower ventricle sending the bad oxygen blood to the lungs thus producing the fluid that…[Read more]-
Hi Carmela,
Not at all, my deepest apologies for the delay – sometimes it is tough to keep on top of my email notifications and replies! You did great with the registration process.
Yes, PAH – Pulmonary Arterial Hypertension. I haven’t been formally diagnosed with it, but the cardio-pulmonary team here keeps a close eye on my pulmonary pressures…[Read more]
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Carmela Vasta became a registered member 3 years, 7 months ago
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Welcome to the PF forums Carmela, thanks for joining us!
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Hi Charlene—Thanks so much…I’ve actively been reading your articles and those of our beloved Kim Fredrickson since I was diagnosed with interstitial pulmonary fibrosis in March 2016. These sites have been the source of my knowledge about the disease. When you posted the article about your legs and feet swelling, and I couldn’t reply without…[Read more]
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Hi Carmela,
Thank you for your kind words about my columns and about our Kim. She’d want nothing more than having us continue to support one another, so I am glad you’re here and we can help each other. Sorry to hear about your diagnosis – you were diagnosed one month before I was. I’m glad the site has been a source of information about the…[Read more]
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Hi Charlene,
Great to hear from you; I thought I had messed up the registration process.
I had to research PAH–it’s difficult keeping the information straight– I gather this is a recent diagnosis? In my case, congestive heart failure was a result of the lower ventricle sending the bad oxygen blood to the lungs thus producing the fluid that…[Read more]-
Hi Carmela,
Not at all, my deepest apologies for the delay – sometimes it is tough to keep on top of my email notifications and replies! You did great with the registration process.
Yes, PAH – Pulmonary Arterial Hypertension. I haven’t been formally diagnosed with it, but the cardio-pulmonary team here keeps a close eye on my pulmonary pressures…[Read more]
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Hi Carmela,
Not at all, my deepest apologies for the delay – sometimes it is tough to keep on top of my email notifications and replies! You did great with the registration process.
Yes, PAH – Pulmonary Arterial Hypertension. I haven’t been formally diagnosed with it, but the cardio-pulmonary team here keeps a close eye on my pulmonary pressures…[Read more]