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Carol Dyck replied to the topic Wrestling with the End Stage of Pulmonary Fibrosis in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 3 months ago
I read with great interest the previous writings here and really can’t add too much to what has already been said. In 2014 I was having an x-ray done in preparation for a shoulder replacement, when my doctor mentioned the ‘scaring’ in my lungs. At that time I didn’t think I had any breathing problems.
Since then of course, it has been getting p…[Read more]
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Carol Dyck replied to the topic Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) 2 years, 9 months ago
Hello,
I have been taking OFEV 150mg for 9 months now and have had blood test done monthly to monitor liver enzymes elevation . There has been a ‘decrease’ in the progression of the disease since taking OFEV. The only side effect that I seem to get from this drug is slight nausea around noon hour. It lasts for about an hour, then di…[Read more]
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Carol Dyck replied to the topic Finding Some Good Amidst the COVID-19 Crisis in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 2 months ago
What beautiful words you wrote and what inspiration it gives everyone to think about how the environment is “resting” for a short time during this horrid pandemic. I read that birds were heard singing and chirping in cities in China where they haven’t been heard for years. Yes, I truly believe ‘good’ will come from this and hopefully the world w…[Read more]
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Carol Dyck changed their profile picture 3 years, 3 months ago
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Carol Dyck changed their profile picture 3 years, 3 months ago
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Carol Dyck replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 3 years, 4 months ago
Hello:
My name is Carol Dyck and live in Mississauga (outside of Toronto). I’m 83 and was diagnosed with IPF in 2014, but in April 2019 I started using oxygen for ‘walking’. Ofev is the only drug I take, so I guess that’s a “plus”. However, I’m only on my fifth day of taking 150 mg. twice a day, and so far have had no side effects. After rea…[Read more]
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Carol Dyck posted a new activity comment 3 years, 4 months ago
Hello Mark,
Thank you so much for you Welcome. I am fairly new to this disease, although I was diagnosed in 2014, and did not have to go on oxygen for walking until a year ago. I am sure the forum will be of great help to me once I am comfortable finding my way around the site.
Thanks again.
Carol -
Carol Dyck became a registered member 3 years, 4 months ago
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Hello Carol, we delighted to have you as member in the pf forum. Welcome!
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Hello Mark,
Thank you so much for you Welcome. I am fairly new to this disease, although I was diagnosed in 2014, and did not have to go on oxygen for walking until a year ago. I am sure the forum will be of great help to me once I am comfortable finding my way around the site.
Thanks again.
Carol
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