Biography

Name

Doug

Nickname

cdmjr47

Year of Birth

1947

Gender

Male

Location

Virginia Beach, VA

Relationship

Patient

Short Bio

Diagnosed in April 2017, after extensive testing and trying several meds I was officially listed as having idiopathic pulmonary fibrosis by June 2018.  Started on oxygen in Aug 2018.  For about a year I was on monthly IVIG infusions but they found there was no impact on the progression.  Finally, in July 2019 we decided to go with Ofev which I am currently still on.  There is some indication that this may be slowing down the progression but not at a significant amount.

Type of Diagnosis

IPF

Treatment / Medical Facility

Ofev / Johns Hopkins, Baltimore MD

Current medication regimen

Continuous oxygen supplement, Ofev and now morphine to ease the breathing

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Best advice for PF symptom management

I am in palliative care and the addition of a steady morphine dose eases my breathing.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

3.5 years

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