cdmjr47
Biography
Name | Doug |
Nickname | cdmjr47 |
Year of Birth | 1947 |
Gender | Male |
Location | Virginia Beach, VA |
Relationship | Patient |
Short Bio | Diagnosed in April 2017, after extensive testing and trying several meds I was officially listed as having idiopathic pulmonary fibrosis by June 2018. Started on oxygen in Aug 2018. For about a year I was on monthly IVIG infusions but they found there was no impact on the progression. Finally, in July 2019 we decided to go with Ofev which I am currently still on. There is some indication that this may be slowing down the progression but not at a significant amount. |
Type of Diagnosis | IPF |
Treatment / Medical Facility | Ofev / Johns Hopkins, Baltimore MD |
Current medication regimen | Continuous oxygen supplement, Ofev and now morphine to ease the breathing |
Lung transplantation status | ineligible |
Supplemental Oxygen | yes |
Best advice for PF symptom management | I am in palliative care and the addition of a steady morphine dose eases my breathing. |
Are you currently taking an anti-fibrotic medication? | yes |
How did you find us? | PF News Website |
How long have you or the person that you are caring for had PF? | 3.5 years |
Privacy Policy and Terms of Use | I agree |